Hi @NewbieChris Yes I am in the UK. In my own situation my symptoms developed very gradually, kind of like seasickness for a couple of weeks at a time about twice a year, then it got more and more frequent, and sometimes (not always) shorter in length. Near the beginning I did also get times when I wasn't sure what was wrong but I just felt a bit 'off. I was working at a school for students with learning difficulties at the time, and towards the end I was finding it hard to cope. My next job (this one) is as a healthcare assistant, and it has been a rocky road at times, but I do like my job and have never considered myself as disabled. Just someone who gets dizzy sometimes.
I realise that everyone's situation and symptoms are different (obviously that was the very short version of my own journey) and I am able to drive to work.
I hope you do get some relief from topiramate, or something similar. Maybe you need a career change, is there anything else you would like to do other than driving? I don't see why you can't be a football coach again if you can get some of this under control.
But like you say, a definite diagnosis and specialist help would be good first!!
When you are feeling dizzy (and don't know how long it will last) it is hard to be positive isn't it, but then you get a dizzy free day/week/month and everything feels different again. You will come out the other side:-)