The Vestibular Migraine Community
Please read our welcome post and user support wiki!

Welcome to mvertigo!


#1

Welcome to mvertigo.org!

This is a support forum primarily for sufferers of Vestibular Migraine (VM), Migraine Associated Vertigo (MAV) and Secondary Endolymphatic Hydrops (SEH) - essentially anyone who is suffering chronic dizziness and/or imbalance with migraines, though we warmly welcome those suffering from other inner ear and vestibular conditions.

On one level, sorry you are here, because we know just how awful, and sometimes how life-changing these conditions can be, but we are also glad you are here, because although we can’t instantly change your circumstances, we believe we can help make things easier for you, help you find the right treatment, lower your anxiety, learn more about your condition and hold your hand towards recovery. You can talk to fellow sufferers, always find someone understanding and know that you are not alone.

One of the great benefits you can enjoy on this forum is: anonymity. This is particularly poignant at this time because of the recent Facebook/Cambridge Analytica scandal. I personally DO NOT recommend you use FB Groups. Consider the potential impact to your credit rating, employment prospects and insurance costs by joining a FB Group that covers a chronic medical condtion! You can use an existing popular Social Media login to login to your mvertigo account but I strongly recommend that you create an independent, anonymous account to enhance your privacy with neither a username nor name that could easily identify you. Another benefit to the broader community of not using Facebook is that if you post helpful information on here it can be found on search engines unlike Facebook which is a closed system.

Feel free to browse the forum and get involved in discussion straightaway. Consider introducing yourself and your situation in the ‘New here …’ Category. But first, you might like to take a look at the following wiki posts and Categories that may answer some common questions you may have:

(NB these posts will evolve over time, so do check back for new content).

Finally, please take part in our User Polls!

NB The wiki pages are for information & education only, always seek a definitive diagnosis and prescribed treatment from your qualified health practitioner.

James

NB A note about my views


Another perspective, but so close to the 'MAV' experience (PLF/Hydrops)
Advice
#2