I joined this website last year and just rejoined as a new user due to changing my email address.
My son got Vestibular Migraine (MAV) when he was just 9 years old and we have had many ups and downs as you can imagine. Our consultant begged us not to put him on medication and we didn’t. He is now 12 and has in the last 2 months had many bouts of dizziness followed by migraine or visa versa. But for the last 3 weeks the extreme exhaustion and lethargy continue and I am starting to panic wondering when we are going to see a change for the better. He can’t do his sports, he goes to bed at 8.30pm every night and it is quite frankly heart breaking looking at a young body immersed in what is like an old person. We are on end of term, and he counted down the days and just tried to get through his last week. ( He had been out on and off for 3 consecutive weeks due to dizziness and migraine.).
When I read the blogs, I get more scared as the tiredness seems to be a huge part of this condition. Has anyone and tips to help relieve/cope with the lethargy and tiredness?