i am glad I found this forum. Since 2001 I have been suffering from vertigo of and on. i know its a loooong time.
I have always had motion sickness since childhood but the episodes came only while travelling by bus or boat. Interestingly, never by a plane.
I have following symptoms over the years-
Vertigo- room spinning sensations. Never nausea or vomiting. When it started, I had to sleep and whenIi got up after 2-3 hours or after a full nights sleep, vertigo was gone. At this point, no medicines were taken.
Afterwards, frequent sensations of unsteadiness, sometimes vertigo from 2005. Was put on Meclizine 12.5 mg as needed. Gave great relief. Almost got my life back.
From 2009, symptoms were bad as i approached menopause. Constant vertigo - especially bad before periods. Tons of mental fog/disconnected feelings. Was told vertigo might be harmonal .
Since 2014, verigo almost everyday. Have been taking 25 mg Meclizine every morning once which helps with daily vertigo.
Vertigo definitely gets worse with lack of sleep, spicy food and stress.
I have done 2 CAT scans, 2 MRIs of brain, numerous ENT specialists over the years, multiple audiometry tests. All normal. Was diagnosed first with allergies, then BPPV. Finally one neurologist in 2015 said this was MAV. Put me on Propanolol 220mg daily. Small doses did not work. The propanolol took away the brain fog completely. But vertigo still comes back if I don’t take Meclizine daily.
i am very concerned with such long term use of Meclizine. My neurologist says its just like benadryl so don’t worry. The Meclizine does not make me sleepy at all. So that’s good. I can do anything basically with that one 25 mg maintenance dose of Meclizine But what about long term side effects?
The neurologist has offered other pills for vertigo but most of them are anti depressants which i don’t want to take due to possible side effects.
Can someone offer some advice?