Hi Amy - couldn’t agree more. That’s the part where I’m struggling the most is that my symptoms are 24-7 and I never thought migraine could be like that. It definitely worsens in intensity and I’ll have episodes where I feel a lot worse (usually after bad sleep, sometimes coffee). I know identifying “triggers” is huge, but I always say how can I do that when it’s constant? Struggling with that.
With regards to derealisation, yes I have that constantly. Again, it increases with intensity and can be so so unbearable I feel like I’m going insane. I feel for you here. I am determined we will find something that works.
I am totally in the same mindset that a magic pill would cure me too. I have also come a long way, I feel like it’s been a decade since these started, but definitely have gotten better at coping. I totally understand your worry about starting a family - I can imagine how that would really take a toll on you and just add another stress to your list. I am 24 years old, but have pretty much been housebound and it constantly limits my ability to be social anymore, so I just wonder if I’ll be able to take up those activities again.
I actually just stopped taking my topiramate. I thought I saw some relief at the lower doses 25 mg so I advocated for myself with my doctor to decrease back down to the lower doses. HOwever, I got some bad side effects with overheating and I value small exercise and being outside so I didn’t want that. I am now trying CBD oil supplements. They have helped with my anxiety the past few days and from what I can tell, definitely have given me more calm and positive outlook on my condition to help me get through work (I work from home - very lucky I can do so and be comfortable when it is bad). I’ll take anything. I still feel out of it and dizzy with my visual eye floaters and the like, but time will tell if it does anything to help that aspect. I am continuing physical therapy as well.