Hey everyone new here
Wondering if anyone can help, I’ve been unwell for 8 months. However I am really questioning if Vm can cause all this .
I’m a 29 year old female trainer from london. I have had dizzy episodes ages 13/19/24 5 years apart with no symptoms inbetween. All of these times I purely had just off balance and rocking with some visual issues mostly the effect of things breathing if that makes sense . Things would appear never still and zoom in and out .
8 months ago I got a virus and then 3 weeks later my worst nightmare started. At first it was intense dizziness and then all these other new symptoms followed. In the beginning I could not leave my bed for months then it became housebound. These are my symptoms :
Intense dizziness / rocking
Visual snow 24/7 like a broken tv screen
Head pressure so bad my head feels like a pressure cooker
Intolerance to movement even people moving in front of me makes you brain hurt my eyes can’t keep up.
Can’t focus my eyes / double vision
Odd visual symptoms , almost looks like looking through heat if I stare in to the distance
Tingling on my leg and arms
Being in a car my eyes can’t keep up and I get disorientated
Intolerance to visual stimuli especially walking outside
Derealisation 247 a feeling of being surreal ( my worst symptom )
I have been diagnosed with Vm and although I believe I had vm episodically as a kid . It never was that bad and life carried on. The last 8 months have been the worst of my entire life . 247 symptoms that never leave me . I have missed out on so much life and I am struggling to accept this diagnosis or see light at the end of the tunnel.
I have seen dr surentherin who I know is highly regard when it comes to mav he has me on nort and also proprananol . Currently on 60mg prop and 30mg nort . However I haven’t seen much of a change on these meds which male believing diagnosis even harder I read so many people online are feeling sooo much better from either time or meds after 7 weeks I’m already on my 9th week of medication .
My question is has anyone been where I am and made it out the other side ? I can’t see the light at the end of the tunnel I turn 30 next month and can’t even celebrate it how can a migraine be this awful ? Any positives would be welcome and does this 100% sound like mav to you all? I have had balance testing all fine and ct scan/mri/ hormones check and routine blood tests.
Many thanks in advance amy xxxx