I wrote this to Scott but perhaps others can shed some light.
I have followed some of your posts on this forum, and you seem quite educated with both migraines and other vestibular disorders.
I was wondering if you can shed some light for me, since I feel entirely in the dark about what I have.
I have suffered from migraine headaches since I was a kid. I remember coming home from school and having to tie a towel around my head to relieve the pressure.
Throughout my teenage years, I was able to keep my migraines under control with Advil but noticed I got headaches around my periods due to hormones and when I hadn’t eaten in a while due to low blood sugar.
About 6.5 years ago, I was going through a stressful time in my life. I was living alone (a big step for me), putting myself through University and working full time. I also had a dog who needed my constant care. During this period, I also had a full blown case of GAD. (I had panic attacks in my teens and relatively moderate GAD).
One night while on the computer I noticed I would start to sway. I got terrible anxiety from this but thought it might be from living at a high altitude (26th floor). The night after the same thing happened while watching tv. All of a sudden, on that night, I woke up and felt like I was rocking intensely on the inside of my body. I don’t remember having any actual spinning sensations but a hard rocking. I panicked and went to the hospital.
I was told I was negative for BPPV and probably had a middle ear infection. In 2 weeks the feeling went away, but I had an off-balance feeling. About three years after that, I experienced similar off-balance, unsteady feelings but no spinning. An ENT confirmed no BPPV or Meniere’s and my GP said it was anxiety.
Now, about three years later my life is full of stress again. I am ten months post-partum and started a new business which takes all of my time. I am completely stressed out.
I started noticing my eye-movements were weird one morning when looking in the mirror. I felt “off” but couldn’t pinpoint why. My eyes were watering all of the time because of prolonged computer use but to the point where I saw halos around everything. It felt as though I had looked into a camera flash.
I went to see an Optometrist who said my eyes were severely dry.
Then, I woke up one night and my head was spinning so bad I couldn’t even look at the Advil bottle (was trying to get my baby Advil for her teething). I went back to bed. Over the next month or so, I would get positional vertigo. I didn’t know it was vertigo, however. I thought it was anxiety.
I started realizing it was vertigo when it only occurred when I would tilt my head to the right or look down to write on a piece of paper. The incidences even while driving were getting more frequent and I ended up going to the hospital. They did confirm I had BPPV because of Nystagmus and told me to do the Epley. I went home and did the Epley for three days and the spinning sensation which occurred from my right ear stopped.
But now, I just have this off-balance, swaying, being pulled feeling for most of the day.
There is some literature on PPPV that occurs after people have an episode of BPPV. But then, there are also Migraines.
During my experience with BPPV, I had violent headaches. One was so bad I thought I was losing vision in one eye. The weather also triggers them. And yesterday, for example, I was starting to feel better, but the Ontario pressure symptoms are so bad a rain cloud literally set off a migraine again. The swaying dizziness sensation is worse today.
My questions are this: In your experience, do people with Migraines get BPPV? I am only 32, and they say BPPV happens in the elderly.
Do Migraines and Stress cause BPPV? On all three occasions (2 of the worst), were triggered by stress or extreme stress preceeded them.
The ENT i went to see on Monday only did a pressure and hearing test and said it was a weird case of BPPV but he thinks it could be TMJ.
He didn’t even do the Epley or any other test…