Hello, forum members. My name is Jesse, I am a 37 year-old male living in Pennsylvania. I have suffered from an undiagnosed chronic dizziness condition for almost 4 years now. My primary symptoms are a constant state of disequilibrium that is made worse by busy visual environments such as stores, city streets, etc…even moving about my two story house is horrible. I often feel carsick when driving and the floor feels like it undulates under me quite often. I also have fullness in my left ear that comes and goes, as well as some strange auditory sensations (myoclonus) in both ears. The condition never gets any better, I do not have “good days”, unless I am somewhere like the beach where there is little visual stimuli but everything quickly returns when I enter a store or return home. The only thing that takes the edge off is a daily does of Klonopin which I have been taking for over 2 years and, by now, it barely works at all. Drinking alcohol also seems to ward off the symptoms temporarily but I do not drink often and certainly not as a treatment for my condition. Of course, I have gone through all the tests; CT/MRI (X2), ECOG, BAER, optic nerve, visual field, tympanic response, hearing, and about a dozen more. I have seen every kind of specialist imaginable, including a vestibular rehabilitation therapist, a TMJ specialist which made me a splint for my mouth that only made the dizziness worse, and Dr. David Zee at Johns Hopkins in Baltimore. His findings, like all the other doctors I have seen, were inconclusive. At one point, I was seeing a neurologist regularly and tried about 5 different migrane meds to rule out MAV, none of which made any difference. Everyone says I am perfectly healthy but I am obviously very ill to the point that there are days when I feel completely and totally “sick”.
I used to hope this condition would resolve itself or that something would work but I am starting to lose faith and don’t know where to go next. I’ve tried everything western medicine has to offer with no insight at all, spending many thousands of dollars in the process. I need some help figuring out where to go next, if this is an allergy, or something a homeopath could help with, or something else? If anyone out there has or had symptoms similar to the ones I described above, could you please share with me what, if any, treatments worked for you or if you were ever correctly diagnosed? If anyone has ANY advice, I am open to just about anything possible because I feel terrible every single day and it’s getting harder and harder to fight. Thank you.