episodic vs constant feeling: interesting.
mine started off as episodic, feeling normal in between, with only occasional episodes
the progressed to 24/7 really bad all the time, roaring in my head, visual disturbances, sense i was going to fall through the floor, room spinning around me, all that good stuff.
then 24/7 with noticeably better/worse days
now getting back to episodic - bad days with ‘nearly normal’ days in between.
so - you can have an episodic condition that feels 24/7 because if an attack affects you for 2-3 days and you have an attack every day, then the ‘episodes’ overlap so you are always symptomatic.
i got this a lot when my symptoms were bad. at their worst, there were times i’d get sick just from trying to look at my hone or a screen.
i have also had some very very strange head sensations over the last months, from a painful crawling up the back of my head, to a weird sense like there’s a metal ball bouncing round in my head, to flashing lights when i close my eyes. sometimes if felt like my head was full of dark matter, being dragged down to the ground. and sometimes just a weird light floaty sensation like i was in space. take your pick
i also had some inner ear weird noises/sense of cold fluid moving, at some point.
i’m being treated for Migraine Variant Balance Disorder. the drugs (pizotifen) definitely help, but it hasn’t gone away completely yet.
whether i have migraine (or something similar) due to allostatic overload, or due to an inner ear problem, or due to a gut infection/antibiotics, i just don’t know.
i figure that if i had a pure inner ear problem, the drugs (pizotifen) wouldn’t have cured my dizziness (it 90% went within a few weeks on the drugs).
what the Drs try to do is work out whether it’s a peripheral (i.e. ears/inner ears not working for whatever reason) or central problem (brain/brainstem/central nervous system not processing the data from ears/eyes properly). If they think it’s a central problem, they call it Migraine, but that’s just a broad definition.
i think by ‘migraine’ the medical establishment means ‘a functional neurological episodic condition’ i.e. they mean there’s no structural deficit or damage, no tumour, but something is misfiring or going haywire from time to time (or every day in bad cases). if you read Oliver Sachs on Migraine, you’ll see the symptoms are as wild and varied as alice in wonderland for different people.
this lady on youtube does a good job of describing some whacky symptoms that i have had as well: