I tried searching but only saw old posts and wondered if any of the newer members have any experience with zonegran?
I gave a second try to nortriptyline and again on day 3 headache came back and it’s very strong, yesterday I saw neuro-otologist and he said he think I’m part of that small percent of patients that react the other way to this med and told me to not take it anymore, at least not until headaches are back under control and we can maybe try again (lately headaches are worse than ever so he said maybe this contributing to the med giving me this side effect and maybe it won’t be like that when the headaches are back to their usual sporadic self).
We went over what I’ve tried so far in the past for my bad migraine pain flare ups and I told him the only thing that’s worked great was topamax but stopped it because lost too much weight (wouldn’t mind that now since I’m not the skinny minny I once was) and lost half of my beautiful hair on top of the sporadic topamax brain moment and tingling on hands and fees so he said we should try zonegran then since it’s very similar to topamax but the side effects tent to be less, I’ll see him in 3 weeks again and if I don’t see any improvement my next step will be Effexor.
He doesn’t seem to think that I need to be on a medication for the 6 week or more to know if it’s going to work which seems so against popular opinion.
Any word on this medication? Since the MAV started I’ve become overly scared of side effects and overthink it.