Just to make this very clear:
I personally believe MAV involves the inner ear and believing this is ‘only a migraine’ is a distortion of reality.
Saying someone has MAV does not rule out inner ear involvement, it’s merely saying their condition matches the published set of diagnosis criteria (developed by a committee of oto-neurologists).
Some believe ‘Vestibular Migraine’ only involves the brain. There is zero science to prove that. It conveniently ignores the massive proportion of sufferers that have very obvious, significant ear symptoms.
The only proven science that exists is epidemiological studies that show that people respond to migraine prophylaxis. I appreciate and agree with those findings: people do. The rest is hypothesis. And it’s become a dangerous obsession in the discipline. Dangerous because it may be misdirecting research and research funding.
Remember: Big pharma makes a packet out of selling pills to chronic patients and there is no incentive to cure them!
The neurologists make a packet from consulting chronic MAV patients. There is no financial incentive to fully cure them! (but that of course would be incredibly unethical, but there you go!)
I had clear hearing loss and my oto-neuro diagnosed me with MAV.
MAV is indistinguishable from some forms of (“atypical”) Meniere’s disease (depending on what criteria you use). MAV is indistinguishable from Secondary Hydrops (hence the scope of this site).
The fight over a diagnosis is futile and superficial, because the diagnosis itself is superficial.
The real issue is finding a protocol that beats the condition you and I have.