I’m new here, and wondered if I could learn from some of your experiences and knowledge.
I have been suffering with recurrent quick spins for the last nine months. These are basically short (~3 seconds in duration) spells of severe rotational vertigo (the most severe I could ever imagine). After a spin, I will feel like I’m tilting, on a boat, or on a turbulent aeroplane for a couple of weeks afterwards.
I’ve been to a specialist ENT/neurology clinic, where the neurotologist diagnosed me with probable vestibular migraine. I have done some reading about this, and it doesn’t really sound like me at all. I have never suffered with migraines of any kind, there is no family history, and these quick spins don’t seem to be a feature of VM. I also don’t have any additional features during my spins - no sensitivity to light or headache or anything.
I asked the neurotologist if it was possible for me to have vestibular paroxysmia instead, because of the quick spin issues. He said it didn’t sound like that, because in vestibular paroxymia you usually feel fine between attacks, and have no vestibular symptoms (unlike me). I’m not sure if this is strictly true, as I have read some case reports about suffers of VP feeling like they are floating inbetween attacks. I also had asymmetric caloric responses, which would seem to fit with VP.
Does anyone here have any thoughts on any of this? Does anyone recognise this as sounding like VM (or even VP)? Any help would be much appreciated. Feeling a little isolated at the moment