So I started the morning by writing you this long response and I tried to “save” it by pressing the save button below and somehow I lost it!!!
Anyway, I’m so glad you have his book. For me the book and these message forums were a HUGE catalyst for recovery in my ongoing MAV journey! Hmmmm, as far as Verapamil goes, this is one of the best meds for this thing. Did you take the SR form of it? Thats what mine is. Also, I also was soooooo med sensative before I got this, but I was at such a desperation/depression point that I was willing to take anything. I was surprised to see that the only side effect for me for all 3 of my daily preventatives was feeling better…oh and some weight gain!!!
I never did the elimination diet, it was just too much for me and the place I was in emotionally, so I can’t really help there.
As far as Buchholz book, well, I really can’t say enough about it. He really nailed all of my “bizarre” symptoms on the head and had me see that I wasn’t a loony bin as far as “strange” symptoms. Like when this first started before my huge attack, I would get this creepy crawly sensation on my forhead…sometimes to the point I could have sworn a bug was crawling there! I would get the same sensation above my lip and the bridge of my nose. My brain would rattle around against my scalp almost like bumper cars do…try telling a doc about this!!! I have also learned from his book, that alot of the body aches that I struggle with are probably Migraine related. I get them alot! My sister gets them as well and now my daughter at 15 is showing signs of Migraine with her body aches!!! (my poor baby!!) At least I know how to help her! Also the brain fog, confusion was bad as well as not really being able to converse with peolpe for fear of loosing words! I have a VERY sensative scalp, lots of nausea, and I still battle a woozy head. I don’t get the rotational spins…mine is more like everything in front of me moves around…but I think that is caused by nystagmus which hasn’t happened since May 2007. Anyway, I am probably confusing you right now. I apologize if I am! Its a long road to find what works best for you with this MAV, but I would tell myself each day, that I was one step towards getting better. That each day that I took a preventative, that I was one step closer to have a “normal” life again.
Hang in there and I am here for you. Please feel free to ask me anything. I found so much strength and hope in hearing any talking with others about their story, what works for them etc…