Every word you say makes sense and is 100% true for me. My partner is so supportive and wants me to do whatever it takes to get wellā¦including taking sick leave. I think he and yourself are so right. Thanks Helen
Jo x
Yes, Winnie the Pooh was a family film for us, but still made me all tear upā¦ Yeah, Iām doing better each week. Iām probably near the 80% recovered mark I think.
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So interesting about the trigger avoidance , I have had this since I was 13 although episodically and less life altering BUT I had no food triggers or light / movement triggers before I find it odd how now at 30 itās all changed . Is that common to have no triggers and then suddenly develop them ? Did you have the same triggers when in episodes as opposed to 247?
You should of seen me driving to the cinema I was smiling with tears because I could look at the car lights 
and thatās amazing news ! How long have you had mav for now ? So happy to hear verapamil is doing itās thing
MAV is getting near 2 years for me. First year didnāt even know what it was. Knowing is half the battle!
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Totally agree honestly I try to raise so much awareness def think more needs to be out there
Whatās He like shopping in Tescos? I know heās good with pegging the wash out, soās mine. āSick leaveā. Go for it. Like me, youāve been through the wringer with this one, thereās no point suffering pill side effects to get it under control, and keep throwing triggers at it to wind it up again. You need to get away from them for a while. Might not be too long. @janb doing OK, sheās not been out long. Your health must come first. Donāt let them make you quit, just put work on hold awhile. Give the drugs a fair chance. Helen
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Yesā¦he does goes to tesco!! Ha ha. Long before i even wake up on a Saturday morning. Think im gonna knock decaf tea on the head and stick to water( i LOVE teaš¢) take whatever meds my neuro comes back with and make a decision about work. I feel not too bad todayā¦dare i say that?
Jo x
I think there are always triggers, bound to be. Itās just we donāt always notice them. Youngsters and perhaps people who have episodic attacks, maybe it doesnāt seem so important because it quite quickly passes, we arenāt āmigraineā clued up (I certainly wasnāt because I was much older than you are now before I even found out it was migraine anyway). Besides triggers can be difficult to spot, cumulative, often (in my case at least seemingly) delayed - by days sometimes, triggers bit elusive maybe.
Maybe I was just a bit dense but actually I must have had 6 or 7 episodic attacks following meals out in restaurants before I made some vague connection. Was it the lights, ir the food but then still I had no idea it was migraine. I did wonder as I had been told it was BPPV, crystals in my ears, how could eating out, bring on a dizzy attack.
I guess so. Who knows. Itās virtually impossible to identify triggers if you have 24/7 symptoms anyway I think. Leastways Iāve not yet found a way but very open to suggestions from anyone who has worked that one out, pls,
I suspect one develops more triggers maybe as the system becomes more hypersensitive when it moves from episodic to 24/7 chronic although I canāt say I noticed them even then. I remember my episodic attacks were totally self contained, no breakthroughs between at all for a decade, then I suddenly started getting weird balance related symptoms between attacks for several years before a major atrack which left me chronic.
If none of the above makes much sense pls to bear in mind. I first suffered āsickā headaches as a teen, once read in a Sunday paper that chocolate could cause this, and, age 13 stopped eating any chocolate, totally and for ever. Still stands. And the sick headaches stopped, The episodic attacks I suffered years later were solely vertigo, not headache, ear pressure, photophobia -not for many years. āJustā vertigo; Totally incapacitating, unable to open eyes or move, fast room spinning vertigo that lasted days, appeared to come from nowhere, and go the same, but there were triggers. Somethjng must have caused it. It has to come from somewhere. Helen
Oh, he sounds just like mine. Something else we have in common. How about trying the John Hopkins diet? Thatās the same as the one Jessyka posted in that thread about Laura Kossack too? Helen
Im going to try everything!!! Im still sitting waiting for a response about slotting in a new medā¦and im making an appointment about the HRT patch. I think i bury my head in the sand and ācarry onā this cant go onā¦its not working Helen
Jo.x
Just hope you hv more luck with yr neuro than me. I emailed mine three weeks ago, no reply. Helen
Thanks so much Helen you make many very valuable points . I probably wasnāt fussed what caused what when I was younger however I remember leaving a night club once and having an attackās . Now I think noise lights itās obvious what caused it . I didnāt even think of that until you just replied . so thank you .
Oddly tho back then my phone light was fine so was driving and shops. Itās so difficult when itās 247 Iāve given up searching . I just avoid the 6 cs and try my best to rest hereās hoping the pitz does the rest
I am drinking quite a lot of decaf tea and coffee - I am not good drinking just water unless it is heatwave conditions. I try to switch to herbal teas - trouble is they have all got lemon in them whatever the flavours. I am having a spot of ear trouble this weekend - nothing too debilitating just annoying pressure especially in my left ear. I am wondering if it is the change in pressure (migraineX alert) or perhaps I am still doing too much. Either that or too much decaf! Lol. Jan x
Iāve had a bit of a flare up this week ā¦
Time to go shopping! Get some Rooibos
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