I’m doing better at the moment thanks. I have still had a couple of horrid episodes though - full on tingling & off balance. Sorry you had a horrid day. Yes DR S said to say at 50mg unless I have another major crash if I do I’m to up the dose again. Dr S is going to do the spinning chair balance test on me the next time he sees me & I think I’m going to do some VRT. He did mention the ‘giant plaster’ and giving things time to heal!
Jem, I have been feeling unwell for about 15 months now , I too got better, if only for 3/4 weeks , then it came back with avengence. Here’s to a better day tomorrow! X
As well as 24/7 headaches & dizziness I also had facial pains. It was for these pains I was put on the nori and it has helped quite a bit.
The topirimate is for the headaches. I am really not very happy about taking both so may come off the nori.
Hope your appointment with Dr Silver goes well and you get some answers.
Anne x
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Hi Anne,
Just wanted to say, I’m on both nori and Topirimate and under Dr S and havent really had any probs.
Just wanted to say hi - and say how lucky we are to have this forum. Donna you are amazing to have the strength to go for another baby with these horrid dizzys - I would love another baby but am too scared so well done you. Your positivity is amazing! As you know I saw Dr S on Wednesday - he truly believes that we can get better - life wont be the same (ie you can’t neck a bottle of red & eat blue cheese all day & expect to feel ok) but some form of normality will return - we need to believe him. I know how hard it is when your feeling sh@t.
I must dash as taking my babies to meet MR Maker!
Take care all
Anna x
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I saw Dr S on Friday and you’re right, my boyfriend just said to me “The doctor spoke like a permanent fix wasn’t even in question, just a matter of when.” … His approach seems to be that we all will get better, failure to do so is not an option. I think it’s really important to keep hold of the postitivity that he has. Not particularly keen on the fact he told me to stop drinking alcohol, but hey (!!)
Ha :lol: mr maker is a cheebies tv presenter - my daughter loves him, he’s an artist - we got to meet him at the V&A on Sunday! (That’s what my weekends look like with toddlers!)
Yes, I agree that DR S has a great way of explains things- I have to take my husband with me next visit because of the rotating chair test , will be good to have someone with a more stable brain listen to what he says :lol:
Has DR S told you about how he’s only failed to help 5 people ever - so our chances are pretty good! You make me laugh with your booze, I asked the same question and got the same answer oh how I love my Sauvignon blanc! X x (going to send you a pm)
