Top MAV doctors in United States

I tried to contact one of the doctors on this list ā€“ Dr. Gizzi at NJ neuroscience institute and was told that since he is a neuro-opthamologist I need a referral from an opthamologist to see himā€¦ Grr

Sorry for the late response but that Dr Gizzi is a Neurologist. Someone gave you bad info.

This is a med page with his qualifications.

http://www.healthgrades.com/physician/dr-martin-gizzi-y3pf8

I see Dr. Norma Melamed in Dallas, TX; sheā€™s a private neurologist. My neuro-otologist (in a major academic medical center) referred me to her as ā€œsomeone who has helped their patientsā€. He keeps her cards in his office.

@SilverPen that is so weird! When I called the number whoever I spoke to [receptionist I guess]? told me that. On NJ Neuroscience instituteā€™s website it lists neuro-opthamology as well as vascular neurology.

I really donā€™t feel like paying to see an opthamologist just for a referral (my health insurance plan doesnā€™t cover vision)

Maybe I should try calling back again

Hi!
I would also add John Macias, MD, FACS to that list. He is a neurotologist here in Phoenix, AZ and he diagnosed me with MAV after I was misdiagnosed with Meniereā€™s by my ENT. He specializes in vestibular disorders, and is very knowledgeable and personable. Since you stated that Dr. Fife is often booked out for many months, and Dr. Michael Robb does not accept insurance of any kind, Dr. Macias would be a good option for people in the Southwest. I was able to get in to see him within 3 weeks.

Anne

Yes. Dr Macias is awesome! 10 years ago he referred me to Dr. Fife after he suspected MAV. So he did save my life. I just saw Macias when I had BPPV because I couldnā€™t get to Fife early enough. The LIST of Doctors is from Fife. These are the Doctors throughout the country that are Otologists, Neurotologist and are also Neurologists, so they have three specialties. While Macias may not be a Neurologist he is also an Otolaryngologist and can obviously diagnose MAV. Itā€™s all about finding the right doctor and there are doctors all over that we are lucky to have like Macias. I did get reimbursed by Aetna after seeing Robb about, 70%

AZSPINNER are you a member of our Facebook MAV group? There are a bunch of us from AZ.

https://www.facebook.com/#!/groups/52537205047/

The Dr. I have seen is Dr. Oas in Columbus. Seems to know a great deal about MAV. Spent 2 hours diagnosing me. He put me on Lamotrigine.

I saw Dr. Richard Lewis at Mass Eye and Ear many years back, prior to my diagnosis of MAV. He was a perfectly nice, and Iā€™m sure a competent physician, but he was not at all helpful regarding my condition. After putting me through a vestibular battery of tests, which all came back normal, he suggested that what I had was simple anxiety. A year or so after my visit with Dr. Lewis I ended up self-diagnosising myself with MAV, and a future visit with Dr. Rauch confirmed my diagnosis. (Dr. Rauch confirmed it was MAV within 30 seconds or so of our first meeting!). I donā€™t mean in any way to denigrate Dr. Lewis, who is very well-resepected, but I would not recommend him for MAV patients.

As a side note, Dr. Lewis and Dr. Rauch work in the same hospital (Mass Eye and Ear). Itā€™s thus a real shame that I had to do my own self-diagnosis and find Dr. Rauch on my own. (This says more about the fragmentation in the system as a whole than it does about the two physicians.)

Adam

I just wanted to add Dr. David Kaylie- Duke University Hospital, Vestibular Clinic
and Dr. Heather Adkins- Duke University Hospital, Neurologist.

Both in Durham, NC

Elisha

I would take Jeffrey Brown from Oregon off of this site.

I saw him and he didnā€™t think I have MAV and ordered PT for my neck. After I saw the PT she thought MAV and told him, and
he sent me back to my regular doctor and didnā€™t want to even try and help me. He said maybe MAV but I dont know. Totally
gave up on me.

ā€” Begin quote from ā€œelishat27ā€

I just wanted to add Dr. David Kaylie- Duke University Hospital, Vestibular Clinic
and Dr. Heather Adkins- Duke University Hospital, Neurologist.

Both in Durham, NC

Elisha

ā€” End quote

I was beginning to think there werenā€™t any options for us in the East. Iā€™m in Virginiaā€“thinking I might look into UVA -which is 4 hours from me.
Iā€™m discouragedā€¦wishing I had a Dr Baloh or Dr Fife around here :?

Thanks a mil! My sister is a researcher at the VA and Duke, so this might be a possibility for me to get a diagnosis; worth an inquiry (though my insurance is awful at second opinions)ā€¦

For anyone in the Northeast USAā€“I would add Dr. Marc Eisen in Hartford as potential for you to consider. He is a neurotologist/ENT. He diagnosed me with VM very quickly. He did not spend a ton of time with me, but he has good credentials and I have a friend with severe Menierreā€™s who sees him often and he recommends him. He runs the Dizzy and Balance Center. He has clinics in West Hartford and Enfield.

I go back to him in July to review my progress.

John Carey at Johns Hopkins is the neurotologist who dxed me. I have no idea whether heā€™s among the best or worst or whatever. He did help me largely regain control.

John Carey at Johns Hopkins, Baltmore, MD, is the neurotologist who dxed me. I have no idea whether heā€™s among the best or worst or whatever. He did help me largely regain control.

Newly diagnosed with MAV and so happy to see my doc is on this list! Spent all day today crying cause Iā€™m so tired of being dizzyā€¦looks like there is some hope for me yet! :smiley:

Does anyone know of a good neurologist in Nebraska who specializes in MAV/VM?

Does anyone know of any MAV specialists in or around San Francisco? I am possibly moving there soon, and might need to move on to another doc or get a second opinion.

Thanks,
Chris

My doctor has been excellent and I finally received the correct diagnosis. I am in control (not cured of course). He is: Dr. Hamid Djalilian, an oto-neurologist at UC Irvine Medical Center. I have shared the information he has shared with me on my blog if anyone is interested. (No ads or sales) There is a shopping list. Hope it is helpful. www.vertigotalesandtastes.blogspot.com

Also, Dr. Djalilian has helped me understand that all triggers play a part in the problem (diet, hydration, motion, light, fatigue) but that any form of stress to my system really exacerbates the problem. For me, eye motion, heat and eye fatigue are significant triggers as well as hydration. I had my major attacks in July for several years before I realized this. I have to not overdo. If you are interested I have a topic in General Discussion on this site: Are you worried about your eyes?
Spinning Girl www.vertigotalesandtastes.blogspot.com