Having watched several videos on this years migraine summit, including the videos about refractory and chronic migraine, it strikes me how experts keep talking about the progression of migraine from episodic to chronic to refractory, but none mention patients who one day have a migraine they never had before and it never goes away. I never had episodic migraines in my life. The existence of many mav patients is the same - one day you get dizzy even though you never had a migraine before and the symptoms last every day or months or years. Yet the experts don’t really seem to discuss this, they treat ut as a progression from acute attacks to chronic. Why are mav patients so different then?
Another thing that has me curious, is why some people with acute migraine attacks develop an attack that lasts a week and they are hospitalised to break the cycle. Yet millions of mav patients with 24/7 symptoms for years on end are given preventatives. I’ve never been given any acute migraine drug to try. Why is this? Why are we different than those who they hospitalise?
The video with David Dodick about chronic migraine was really informative. He said people with chronic migraine have structurally different brains than those with episodic migraines. They aren’t encountering more triggers because they are putting themselves through more triggers, they don’t have a worse diet or lifestyle, they have more sensitive brains and arw triggered by more things. He talked about central sensitisation too and i think that must be a big factor for MAV patients since so many of us present with constant symptoms.