Hi everyone, new to the forum. I’ve had the “dizziness”, really mostly that standard offbalance in motion, brain on a slight time delay, type of feelings that it seems most of you describe, every single day since February. Before this I may have had similar episodes that only lasted hours, days, or a couple of weeks in the 2-3 years before this year, but back then I chalked it up to my health anxiety and never paid as close attention as this year, since, well it’s hard not to pay attention to it when it is every day!
After going through the quick gambit of docs who had no clue what was happening, it finally seemed clear that I had more of a long-term case of vestibular neuritis than the typical 3 weeks. That diagnosis seemed legit as from March on through August, as it seemed like each month got a little bit better, and the typical longterm case of VN seems to take 6-12 months to achieve normal or near normal status. By August I felt pretty good and had an appointment with Dr. Hain then, and was ‘almost’ feeling normal. Dr. Hain concluded that I may have some sort of seasonal recurring vestibular neuritis (rare) but more likely it was a sort of seasonal vestibular migraine…even though i have no headaches.
Well then Sept rolled around and I noticed I got slightly worse…and unlike other blips along the way it hasn’t gone back to ‘new baseline’ after a few days, and October so far has continued to trend the wrong direction.
The more this goes on the more it seems likely that the VM opinion is the accurate one…I’m even feeling a bit of low level pressure in my head a lot lately. Weather is changing a lot, I felt worse after a couple strings of consecutive days involving social alcohol, etc. TheraSpecs seem to have offered significant improvement in flourescent lighting areas like the office, mall, even had success with them at a Vegas casino! I had actually come across them as a potential help for VN, which the sales rep kindly pointed out was not their primary thing to treat but that it was reported to have some success with some people with VN so I went ahead and got a pair. Of course, what they are primarily supposed to help is… migraine!
NB from admin: this image links to a product members have found helpful and at the same time help fund the site: As an Amazon Associate I earn from qualifying purchases. Thanks for your support!
|Theraspecs (US)||WearOver Theraspecs (US)|
|More relevant eyewear here|
So I’m curious about a couple of questions about things I can do, and hoping to see what feedback those in this similar crappy situation think based on your own experiences.
I was doing a few VRT exercises at home almost every day while I thought it was a VN problem - to “retrain the brain” after the alleged nerve damage. But if the problem is migraine does that mean there is no nerve damage and therefore nothing to retrain? My tests at Dr. Hain’s came back clear… Do VM patients notice improvement (or lack of getting worse at least) doing consistent VRT exercises? Might there be different exercises?
In trying to find food triggers, just how long of avoiding something should it take to notice just some improvement? I know that Buchholz’s recommendation is 4 months…but well, I am addicted to pizza and cheese…and this is very disheartening to find that my great friend might well be a great enemy! lol. Is the 4 months for total improvement or only to finally begin detecting improvement??
Also, the way this goes through my day is very consistent, really 90% of my days follow the following format, whether it is a bad day or a ‘not so bad but still there’ day. Doesn’t matter what I’m doing either home, work, social, etc. Curious if anyone has any insight into what that might mean in the scope of VM.
- first half hour or so upon getting up: not terrible issues (although very tired, but I’m not a morning person)
- the rest of the morning: the worst part of the day
- sometime after lunch/afternoon: symptoms feel significantly improved from the morning (still there though, just not as intense), brain is much clearer, energy level up
- In the later parts of the evening: symptoms seem to come down some from the afternoon high, but still usually not as bad as during the morning.
Hope this isn’t too much for one thread! Thank you to anyone who takes the time to read this and/or respond!