I was diagnosed with MAV 8-10 years ago after suffering from several severe vertigo attacks. i was doing much better (that is no vertigo) until earlier this year when I started with a brand new problem. I am now on my 3rd attack of a very strange cluster of symptoms that seem to have no name.
- imbalance (no vertigo)
- head and neck ache ranging from barely there to bad; achy behind eyes
- walking and talking at the same time gives me a very strange feeling,as does walking and eating crunchy food at the same time, difficult to explain, sorry!
- touching certain areas on the left side of my face gives me a terrible painless zapping feeling, again difficult to explain. Right side is fine, no problems and it is only certain areas of the left side of my face and these feelings/sensations/areas are consistent with every episode. It is extremely uncomfortable.
I’ve seen several doctors and they shrug their shoulders and give me the vestibular migraine diagnosis. I had a dental implant about 9 months before this started and thought that might be it but dentist said no.
It’s the last symptom mentioned above that I am particularly concerned about as I have never seen this as a symptom of migraine and I personally don’t think it is migraine related. So I come to you as the MAV pros, has anyone ever experienced this strange feeling (of my last symptom mentioned above)? To me it sounds more nerve related, possibly trigeminal nerve, but it is painless and everything I read about problems with the trigeminal nerve says it is very painful.