Your search for assistance sounds a bit like mine. After twelve years of misdiagnosis and when symptoms really escalated I stumbled on the word ‘neuro-otologist’ somewhere on the internet, researched it, and found one I could get to see. Makes sense your lady’s description of visual vertigo that she’s had MAV herself. Don’t see how anybody else could have come up with such a perfect description other than by experiencing it. Wouldn’t have been possible. Helen
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