User Submitted List of Symptoms!
An expanded list including all the symptoms that our board members have reported. You may not experience them all! Please bear in mind, though, that not all of them may be officially recognised as VM/MAV/SEH symptoms!
Vestibular:
- Dizziness
- Spinning attacks, where you feel the world spin around you which can cause intense nausea (true vertigo)
- Light-headedness
- Imbalance, unsteadiness on feet
- Motion intolerance
- âMarshmallow floorâ, a feeling the floor is made of soft material.
- Feeling that path/road etc is moving up and down as you walk on it
- Rocking or Push-pull sensations & false motion
- âMagneto Headâ where you feel your head is being pulled to the ground
- Mal dâembarquement - feeling like you are on a boat or just got off a boat, seasickness on dry land
Visual:
- Eye strain
- Visual Hallucinations/Visual distortions, e.g. where colours seem too vivid, or buildings seem to be like surrealist painting, clouds seem like animations or true hallucinations such as seeing things fall or fly by that arenât there
- Visual snow, flashing, colours, spots, âtrailsâ and after images, etc - non-classic visual aura
- Trouble focusing
- Sensitivity to bright light/photophobia
- Discomfort in front of or intolerance of computer, TV or video screens
- âVisual lagâ ie where there seems to be a time lag between motion, eye and brain
- Appearance of objects moving in parallax eg looks like trees are moving behind each other, like horizon is moving against sky or a portion of the visual field is rotating
Ear-centric:
- Tinnitus (fluctuating, intermittent or persistent)
- Dulled hearing
- Ear pressure
- Ear pain
- Fluid sensations in one or both ears
- A feeling of ear âfullnessâ
- Sensitivity to loudness (* Hyperacusis (everything sounds too loud)/phonophobia)
- Dryness âcrackingâ in eustachian tube.
Neurological:
- Nausea
- âBrain rumblesâ
- Incapacitating & incredibly uncomfortable migraines that involve intense motion intolerance that can last over 10 hours
- âRegularâ migraines with or without aura (i.e. with headache?)
- Brain fog, where cognitive function is significantly impaired, you feel like you canât think. This is a scary and debilitating symptom, but just like the others, it passes eventually.
- Slurred speech
- Unusual headache sensations, eg crawling headache up back of head, headache or scalp/painful scalp, head pain in specific and unusual areas
- Classic migraine visual aura without headache (blind spots, scintillating scotoma, zigzagging lines, etc)
- Anxiety or sense of doom
- Feeling of unreality/displacement (eg iâm standing in my road, but it doesnât feel like my road)
- Pain or pressure in the crown of the head or behind the eyes
- Brain zaps, brain hiccups or electrical storms
Neuropathic:
- Numbness of face
- Numbness of tongue
- Numbness of hands, feet, legs, including tingling of legs, general feeling of weakness
Other:
- Irritable Bowel Syndrome (IBS)
- Tightness of stomach, churning
- Bloodshot eyes during and between episodes
- Fatigue, or cycles of fatigue and restlessness.
- Insomnia due to symptoms
- Exaggerated motion sickness or motion intolerance (eg being passenger in car could cause nausea, or could cause headache or brain fog and other symptoms)
- A sense of crawling tiredness behind the eyes when youâre trying to process motion etc during these episodes
- Neck pain
- Feeling like you have sinus or ear infections when you donât
Especially odd ones:
- A feeling one leg is heavier or longer than the other.
- Discomfort in reclining position, e.g. in bed and/or during turning.
- Heavy head - where you feel like youâve been drugged and are barely awake/conscious
- âRubber ball headâ i.e where you feel like your brain is bouncing around like a rubber ball
- False fever: slightly raised skin temperature and feeling of fever, without real temperature rise, sweating [NB always get this checked out in case of real fever]
- Shivering, a feeling of being frozen from the inside out. Hands and feet colder than the outside air.