Soooo…had my appointment with a UK Lyme specialist today. What a lovely guy. Took a very detailed history, explained the incredible controversy over Lyme, particularly in the U.S. He explained that even infectious diseases consultants are incredibly uninformed over Lyme, as are almost all G.Ps. He said it is completely false that it is easily treated and that chronic manifestations absolutely exist. He was very very balanced and explained that the scientific community is polarised, with one end claiming Lyme to be rare and specific to certain localities, and the other camp advocating extremely high doses of antibiotics for indeterminate periods of time. He based everything he spoke about on peer reviewed evidence and his manner and considered approach gave me a huge amount of faith in him.
He said that given my history of visit to such an endemic region of the U.S, my background in agricultural science that has led to multiple potential exposures, history of a bite and the very positive blood tests, Lyme is a no brainer. Once he had taken a history he asked me to fill in a symptom checklist inclusive of stiff neck, headaches, and wait for it…a whole section listing, to quote, ‘dizziness, imbalance, vertigo and lightheadedness’. He said my blood tests were highly positive and he rates Igenex as a reliable lab. He was so shocked that the infectious diseases consultant had discarded these tests. I had about 90% of the symptoms listed I can’t remember all of them but they included anxiety, tremors, muscle twitching etc…
So now I am on 300mg of doxycycline for the next 3 months, he said the prognosis is good and I should see gradual improvement. He doesn’t personally use IV antibiotics as no evidence has backed their increased efficacy over oral dosages.
I feel very very relieved to have finally got a definitive diagnosis and treatment plan. I was also really glad that he had imbalance and dizziness listed as specific diagnostic symptoms of Lyme. I’m far from saying everyone on this forum has Lyme, it’s incredibly unlikely, but I personally had other neurological symptoms, a high risk of tick exposure and very positive blood tests…if anyone wants to ask me anything please do. I don’t think the Lyme issue will be solved anytime soon, it’s an absolute minefield and the scientific community is divided!