Can attacks last weeks? What to do during 1 i never know! How to heal from 1?
Not in my experience. They can last hours though (up to 14?). In my experience and from what Iāve observed on this forum about 2-3 weeks to get back to baseline after an attack is common.
No one has what i have vertigo in sleep night after night. But vm can be years of daily dizziness yes?
I had that every night for over 2 years. It then went. Itās a very common symptom.
If you have fewer symptoms, then feel lucky :).
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You had vertigo in your sleep night after night? Omg really like me? Felt better with eyes open?? Me 10 yrs of it. Ill take it any day over an attack as messed up as that sounds.
Trust me i had 2 yrs of complete hell amd torture and i fear it coming back of attacks become more frequent
Yes. Most Probably. Meds are called āpreventativesā because they āpreventā (alot/most
symptoms most of the time. They are not a cure. So far there is no known cure. Maybe one day. Helen
I would like to challenge that one. Meds donāt suppress my dizziness as far as I can tell, they help reduce my migraines, help me sleep and keep my anxiety at bay so that my body can actually work on healing. I avoided meds for a long time - in hindsight I wish I would have started taking them at the very onset of illness.
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Agreed. MAV is like a brain trauma. Meds help heal the brain and allow the central nervous system to recover.
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Hello, @An4749. I donāt believe youāve told us where you live (country and city), which might help us point you toward some resources in your area. Dr. Hain (in Chicago, Illinois, USA) has a great website with a lot of information (www.dizziness-and-balance.com). One particularly valuable item is his flowchart that shows his thought process when considering drug treatment for VM.
Here are two places you can find it. This link is to a page on his website; the flowchart is near the bottom of the page just above the footnotes:
Vestibular Migraine
This link goes straight to his PDF version of the flowchart:
If Iām reading your posts correctly, youāve seen a lot of doctors and had a lot of tests but it doesnāt sound like youāve tried any medications yet. Not everyone experiences bad side effects; every person is different. Drugs help many of us (Iām going to go take some ibuprofen right now for my sore back!) and itās likely that if you can find the right drug, it can work for you.
I believe you also asked, perhaps in another thread, about MRIs. The only reason they do an MRI is to rule out something like a brain tumor. Beyond that, the MRI doesnāt provide much information about why someone is dizzy. If youāve already had an MRI then another one wonāt be of much value. There are many other vestibular tests that might be of value (VNG, CDP, ABR, ECoG, VEMP, hearing test) if you havenāt already had those.
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Hipe do we do it naturally
Done them on several times and in sept did 4 hrs woth at a balance clinic. Im from Australia also.
I slept last night no dizziness after a week of hell! I guess i ask id i have done all the tests is it just a matter or accepting this vm and living with it. Of it comes back it does? No real cure as such???
Emily ā¦
That quote is exactly what this illness is
Jo
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I never found a way without meds. Iām as natural and hippy as they come. But no matter how careful I was with diet, hydration, exercise, sleep hygiene, balancing electrolytes, and mindfulness, I simply couldnāt get better until I suffered thru a few med trials. Effexor was the key for me to make all my other measures work. In the end stubborn resistance to meds wasnāt worth the living hell of untreated MAV.
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Without meds have tou ever had a symotom free period if so how long
Iāve had MAV in varying degrees for 20+ years. Some periods were more or less symptom free, but not without meds in the last couple of years. It used to be a strict ketogenic diet could get me there. MAV went chronic and acute in September 2017. Since then I have needed to have meds. I can say my life is just fine. I work. I play. Iām careful with my diet, exercise, etc. MAV is more or less a nuisance now rather than a disability.
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For what itās worth, have you tried something like melatonin in the meantime to help you get to sleep? No it wont help the dizziness when you are sleeping, but maybe it can help you get into REM state and sleep through most of it?
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The cycle broke last night and hope the episode is over. I wake up always feeling dizzy like faint and gives me horrific anxiety as i have a fear of fainting. Is that more anxiety of vm?