A common theme I see here and other dizzy places is along the line of "I was misdiagnosed with labyrinthitis (and/or meniene’s and/or bppv and/or mav and/or pppd etc.) and I finally saw a doctor who knew what they were talking about and have now been officially diagnosed with labyrinthitis (and/or meniene’s and/or bppv and/or mav and/or pppd etc.) I personally have been “officially” diagnosed with 6 or 7 different vertigo disorders. How does anyone know which one is truly the one? Or can they all be different names for the same disorder?
Reading through a symptom list I could just as easily have MAV as I could have Meniere’s as I could just about any of them. And it’s not like the symptoms are clear cut - two people could have a totally different list of symptoms but both will be diagnosed with MAV. And meds help some of the time but other times they are useless or make things worse. So are the meds really helping or is it just coincidence? I fell hard on my forehead a month before my first bad vertigo attack (10 years ago). Is there a connection? I’m told with a shoulder shrug maybe, maybe not.
My vertigo/dizziness comes in all different forms from severe hours long vertigo where I can’t move at all to a chronic motion sick feeling to sometimes feeling great to brain zaps/mini-spins. I never had light sensitivity with a migraine headache but do with a vertigo attack. My latest episode of vertigo (after 7 years of being vertigo free) was totally different than the others in that the horrible unsteadiness lasted two weeks and this time I became extremely hypersensitive to noise to the point where I couldn’t eat crunchy food or walk and talk at the same time. Walking up and down stairs was near impossible because of the side vision going up and down. With these new symptoms does this mean it’s a totally different dizzy disorder? And when I see the ENT next week will she have any insight at all as to what’s wrong with me? Probably not.
I’ve seen neurotologists who don’t know, regular ENT’s who take a good guess, PCP’s who say MAV is a term they use when they doctor’s don’t know what is wrong, GI doctor says it’s my celiac, ER docs who say, yup, you’ve got vertgo.
Unless one has a clear cut abnormality that shows on an MRI or scan, how does anyone really know for sure what is wrong?
(sorry if I come across sounding angry, I don’t mean to, I just frustrated at this whatever disease)