Im not convinced that all MAV or Vestibular Migraine is ear related James ,I say this because I have no flickering of my eyes - something which the Consultants were looking for to diagnose ear problemsā¦I think ear problems is just part of the four centres of disruption - ear, eyes, back and neck via nerve impuses and migraineā¦any disruption in any of these areas can have a cross over effect in the cerebellum. To say that all migraine are linked always to ear problems is ignoring other areas of disrupted signals. I think we will never proove our theories but its all good discussion topicsā¦
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But migraine isnāt a headache necessarily. I donāt get headaches and many of us donāt. Some people get migraines that make them go blind, paralysed or I heard about a woman who couldnāt recognise familiar faces. For us itās vertigo, for others itās extreme headaches. Itās abnormal brain activity and itās mainly a hereditary thing. Weāre predisposed to this and given the right conditions, it will rear its ugly head. Well, thatās what my doctor says anyway!
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Paul I was careful to say āmanyā, not all.
Scott, I hear you but fluid in ears, violent spinning vertigo? Not buying it. But guess we may never know ā¦
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I believe itās because itās coming from the the brain stem (where our brain deals with our balance signals) is irritated. It doesnāt trust and misinterprets the signals it gets from our eyes, ears and body. My ears donāt bother me but my eyes get really messed up.
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Then at the very least there are a few flavours of MAV and there are underlying different pathologies, but for me, migraine still must be secondary to some other impetus as I understand migraine to be state of a healthy brain under stress.
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i tend to agree with this scottlā¦this makes the most sense to me that the brain gets confused by the brain stem erratic signals and people can have one of my stated areas of erratic signals up to possibly four under the worst case patientsā¦this to me is why people have various personal symptoms but connecting āsameā symptoms ā¦depending on where the erratic signals are basedā¦and a perfectly good signal coming from your ear lets sayā¦could be converted slightly by an erratic nerve signal from your back and vice versaā¦no wonder we have so many problems if this is whats happeningā¦only my theory and no basis for it apart from what i know about my own systemā¦
hi, Iāve just started on Pregbalin and have been very nauseas and dizzy. Was this the same for you?
No I didnāt have any of those side effects. However the consultant gave me an alternative medication called pitzofen if I needed to change due to any severe side effects. How long have you been taking it for now?
only a week. Hoping it levels off.
Give it some timeā¦they say about six weeks for all new medication to see if you can tolerate it
yes I will do. I might try taking it at night instead.
I disagree. He barely did anything for me. I saw him about 5 times and each time was for like 2 minutes. I would be not great and waited months to see a specialist and when i did all he did was say increase the meds. It hurts me that some appointments dont need to happen. And the drs could just say what they to over the phone or something. 
Anyway whoever reads i hope your all well
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I think some people get carried away a little and at least he is a giver of hope (which is not easily dismissed). However, he can only achieve what can be achieved just like any other doctor.
Iāve had other people make OTT recommendations about him and had to issue a reality check. Without doing so would be to give people unreasonable expectations of what can be achieved. And this is not a platform for private doctors to promote their Ā£160/30 min sessions. There are also many equivalent alternatives and you can get the exact same protocol prescribed from another doctor on the NHS.
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