I hope everyone here is doing well and not letting this awful thing get the better of them. I have been tried to my wits end recently hence the post:
I have an appointment with an oto-neurolgoist tomorrow afternoon and was looking for some advice on questions that would be useful.
I have seen this neurologist once before and I made another appointment to see him again as I was feeling very poorly with vestibular symptoms which have calmed quite considerably since, nevertheless I am looking forward to the appointment as it is probably the only conversation I will have this year with someone who understands what I am talking about.
So a brief history (I have posted previously on this forum) I have suffered with vestibular symptoms for over three years, initial diagnosis was vestibular neuritis that developed into Vestibular Migraine. I had the caloric tests done to prove this.
Since getting the diagnosis I trialled a few drugs but have settled with Amitriptyline over the last six months and have little side effects and pretty good results, my quality of life has improved considerably really. After several months I had a major wobble where I was unable to walk very well, I could not move without holding a wall or furniture or basically bumping into things. This was a major setback but it has settled down a bit now. The setback happened after a family visit to my sister’s house that involved some late nights and also nights with poor sleep (very excited 6-year-old visiting his cousins). A couple of day afterwards I could barely get out of bed for dizziness (I know , how dare I try and live a normal life ).
As mentioned symptoms have settled a bit now. My dosage of Ami has increased over the months and I levelled out on about 30 mgs. The last few days I have upped this to 50 and have felt better although this may be a coincidence as symptom were improving anyway I think. I am reluctant to up the dose as ideally I want to be reducing it at some point but in order to keep myself afloat I have to take what makes me able to work and function.
My wife is pushing for a summer holiday this year, somewhere hot in Europe, so ideally I want to keep myself right for this as I pretty much ruined the holiday last year by having migraine symptoms all day everyday which has got me very anxious about this year (I was on propranolol last holiday that stopped working hence the change to Ami)
So do I continue as I am with the Ami or shall I ask to try another drug alongside such as a calcium channel blocker? I am not particularly au fait with all drugs hence the question.
Just looking at options to discuss with him really?
Any advice greatly appreciated