hi! I’m sorry I read probably 2~3 posts but I can’t find them except one. I don’t know how to cut and paste nicely like you have but I copy paste an excerpt below. This one is from a poster named: JEM Aug 2012 titled Do I have MAV. I have read other posts like this (?) where it seems like people improve after 1st major insult but then down the line worsen again. I don’t know if what I am asking make sense tho (?).
My dizzy nightmare started in April 2009. Out of the blue I woke up feeling off balance, strange, tired. Tried to continue working etc but things got worse and panic attacks set in. Over the next few weeks and months visited loads of different GP’s, then ENT’s who did not know what was wrong. All tests (bloods, urine, MRI brain scan and vestibular testing) came back normal. Finally after 9 months saw a neurologist who confirmed my own self-researched diagnosis of vestibular disorder, probably VN. Was referred to local NHS hospital for some VRT/physio and then a Chronic Fatigue course due to my severe tiredness. By this point (one year in) I had given up my job and was suffering from severe neck pain/aching, fatigue and chronic disequilibrium.
Over the last 2 years I took things easy, not working, doing daily VRT exercises, eating healthy, no alcohol and avoiding pushing myself or getting stressed. I have continued to have chronic symptoms although the last year I felt them less intensely and was gradually doing a bit more, hoping that over time things would eventually get to a point where the symptoms wouldn’t bother me too much and I could live a fairly normalish life. Things have been a bit up and down with some days better than others for no apparent reason. The last 5 months or so were probably the best I have felt, although definitely not symptom-free. However, since the start of July 2012 and now August (now 3 years 4 months in) I have been feeling worse again. Not just a slight blip but significantly more dizzy with some horrible spinning feelings which I felt sometimes during the first year. They have occurred about 5 times in the last 2 months randomly but I don’t think it’s BPPV as it isn’t triggered by head positions and I can do a self-epley maneuver without any effect. Over this period of worsening symptoms, my chronic neck pain has really increased and I have felt more spaced out, woozy headed and another thing I have noticed (which occurred at the beginning of it all) is that I keep needing to wee lots. I only mention it because frequent urination I have read can be indicative of migraine.