I’ve been taking Propranolol for 2.5 years. As my GP was clueless about its use as a preventative I ‘wasted’ over a year on too low a dose to control enough symptoms, but once increased by a second neurologist’s recommendation and following about 8 months on the upped dose I really started to see results. I’m now 18 months into the upped dose, steady balance (no rocking) and generally at about 85%. Even had a very few days 100%. Still doesn’t take much to wind it up but many symptoms much reduced most particularly the extreme photophobia. So on I go with the Propranolol, or so I thought. I do have an added complication in that I have GERD which means some brands cause me chronic indigestion which has been attributed to their outer coating,
There is a current and ongoing shortage of the twenty most commonly prescribed drugs. I’ve written elsewhere about it months back. I had already been advised it might be difficult to obtain my preferred brand. Last month I collected some of my pill allocation and an IOU! This month I have been given a full quota of a totally different brand. This morning I spoke to the pharmicist about the possibility of obtaining my usual brand and was told that would be impossible. Nobody (stockists) have any although he suggested I might want to ring around myself to different chains to be sure. After a brief discussion on the various possible reasons for the national shortage he told me it’s not just a question of ‘my’ brand being unavailable but Propranolol generally being in short supply and said it could happen that there would be no Propranolol available anywhere at all, at which point he suggested my best bet might be to go back to my GP and just ask to be put on some totally different drug instead!. Just as if it were only that easy!
‘Out of the mouths of babes …!!
Just thought my fellow MAVers might appreciate the joke.