Constant nausea
Nausea and vomiting with movement
Vertigo and nausea whilst performing repetitive tasks, ie stirring a saucepan, chopping vegetables, cleaning etc
Alice in Wonderland syndrome
Loss of perception of distance, height and depth making navigating curbs very tricky
Those were my constant companions on top of all of your suggestions!
Well done Emily. Letâs give the poor guy a break. He needs a break. Iâd willingly assist too. With any admin I cd. My computer skills bit out of date but cd be fixed I guessâŚ
Itâs not a huge effort once we have a refined list (itâs a Wiki you have access to edit (Edit button bottom right of post), fill your boots with refining it ).
Most of the effort will be in refining the list so its nice and readable, doesnât duplicate anywhere and not easily misunderstood (e.g. no symptoms that can be misinterpreted) so that itâs ready for the poll.
The Big Med poll took me hours and hours to write because getting the choices right is soooo important. (and even then we eventually missed a med (Prednisone) )
My main concern is performance, but on balance happy to âhave a goâ, we could always delete the post (and I may be able to delete the entries in the back end).
That cd be a difficult one. Noticed that recently trying to get to grips with somebodyâs symptoms. I think their ânumbâ âinability to feelâ - which I equated to the dentistâs numbing - was what I would always refer to as âtightâ, âfullâ. Certainly cd be difficult one. Are they âsymptomsâ or sometimes âsensationsâ one wonders and we all feel so differently depending on past experience I suppose.
Yeah, maybe thatâs too restrictive ⌠symptoms are âwhat you experienceâ so maybe itâs ok to just confirm âthis was what it was like for meâ ⌠if not ⌠no issue?
Just my two cents, but there are so many different reasons why each one of us has the symptoms we do, I donât think a poll would really help anyone. It would take up Jamesâ time, but for no real benefit of the users. I think a comprehensive list of possible symptoms should be sufficient for people to decide it âcouldâ be MAV and go to a doctor armed with that information. I love that everyone here is willing to share their stories. Some I relate to, and others I do not, but I definitely have compassion for everyone here. Itâs life altering in one way or another. No matter what itâs actually called (or diagnosed as), weâre here to support each other. I say leave the survey for the doctorâs office and letâs just give support and honest feedback from our own personal experiences.
As a newby to this I love the idea of a symptom survey but looking at everyoneâs replies think it might be difficult as the list is getting longer. The wiki re symptoms is great - I hadnât found it until now. That in itself is so useful. What if the survey had an option to describe âotherâ symptoms not listed? You might then be able to keep the survey 's main list a bit shorter? If this is a silly idea please ignore it .
Iâm new hereâŚand so relieved to see a few of my symptoms here that I havenât seen elsewhere. I get split-second brain zaps. Itâs as if someone shakes my brain upside down and then rights it in a matter of a fraction of a second.
I also am extremely taxed by the following: looking at books or other items on bookshelves (e.g., floor-to-celing shelves) and cooking. The bending and back-and-forth moving in the kitchen required in meal prep are quite challenging. Anyone else experience this?
i could not cook for a few months, it was very difficult. I am now able to do it without feeling super dizzy, tired and freaked out, particularly breakfast ans lunch. At dinner i am very rocky so it is still a little challenging to cook a that time.
I only had brain zaps when coming off an SSRI. My sister has them though and she is not on an SSRI. I had one once when I was a teenager. I suspect its related to sleep deprivation, thatâs when both me and my sister have had it. But who knows?
I had so much anxiety at the beginning that I could barely read bedtime stories to my son. The pictures were just freaking me out, like I was having a bad drug experience or something. So yeah, minimal reading or watching TV for at least 6 months.
And yes, cooking was one of the hardest things because of all the stuff everywhere and constant turning and looking and bending.
With active unstable MAV your balance is challenged and your brain has to channel more of its limited resources to âjustâ keeping you vertical and itâs not alot of spare capacity for other things.
Itâs pretty common. One that would finish me for a long time (serious nausea) was making any sort of sauce. Just watching it go around and around the pan as you stirred it. Like the book situation I think itââs probably the lack of a distinct focal point for the eyes. They just donât know quite where to look. Maybe increases nystagmus perhaps.
Water coming over your head in the shower will do it as will heavy rain running down a car windscreen. Well people just donât realise how much of what we see is controlled by the brain, not the eyes and MAV/migraine affects the brain. Hence all these seemingly weird symptoms when the brainâs a âbit hyperâ as a migraine specialist neurologist I saw said.