To give them an explanation that makes sense, something convincing.
Not what i’m saying. I’m not denying there is a MAV/VM condition. The diagnosis as a class of condition makes complete sense. I have said this many times.
However, I’m suggesting that the root cause of ‘VM/MAV’ is not migraine, but possibly Hydrops. Doesn’t change the treatment necessarily, just feel the ‘migraine camp’ are completely barking up the wrong tree with the science. You know very well Secondary Hydrops has the same set of symptoms as reported by MAV/VM patients - don’t you think that is rather a big co-incidence?!
I’m not putting a figure on the number who have an ear injury - could be bio-chemical imbalance that leads to fluid imbalance, or other causes as yet unknown. But I believe determining if you’ve injured your ear is very difficult as you may not feel any pain - I didn’t. A simple flight in a plane when you’ve had stuffed up tubes can do it. Pulling out in-ear headphones too quickly can do it (see Hain). And then apparently Hydrops can take up to 10 years to develop, so you don’t make the connection … you go to the doc and he tells you you have migraine because he didn’t get this information and didn’t make the connection either …
Your paper states that hydrops has been found in patients with VM (and we’ve shared one before that you found) - there is the evidence - they can have hydrops - this is the paper you just posted!
I’m after the truth, just like everyone. I see something wrong here. I see people in positions of power telling people things that don’t make sense. People have a right to know what is going on with their bodies.
There are camps. Some doctors do not believe the migraine hypothesis. And neurologists appear to differ significantly from ENT’s in their opinion.
I had an ear injury that lead to IDENTICAL symptoms to someone who has been told they have MAV/VM. I’ve also responded to the same medication! I didn’t just have Hydrops symptoms + migraine - I had MAV! I have experienced all the symptoms described on this site, including the brain fog, the pulsating head, the stiff neck, the rocking, the swaying, the dizziness, the marshmallow floor, motion intolerance, imbalance - i could go on. I have had exactly the same condition, save I had it worse in some ways, like you i’ve had hearing loss and crazy tinnitus, though I don’t like to compare suffering.
Did I have ‘Migraine Associated Vertigo’? Yes I did! I had migraines and I had vertigo, there is some level of association - I had MAV! Does that title assume an aetiology? No, its an association not a causality.
I was not happy when my neuro dismissed my injury and her explanation sounded ridiculous - that I’d had a genetic mutation! Alarm bells went off at this point and I saw a big red flag!
Me having migraine is no fluke - its because its probably the very same aetiology causing the migraine.
The idea of migraine causing these symptoms is a position of belief, not proven science. It’s just a hypothesis.
I cannot believe that we have a movement which is telling people their predominantly audio-vestibular symptoms are migraine and not an ear issue + de-compensation - Its not unlike believing the world is flat!
This doesn’t prove causality is one way or another … its just showing up neurological symptoms, as expected - I would never refute there are significant neurological symptoms in this condition. Believe me, I’ve had them and some!
But just because people have migraines doesn’t mean migraines cause the migraines!!!