I have a migraine variant balance disorder - dizzy/ear ringing etc a lot for 22 years now. My 16 year old son has started displaying migraine variant symptoms - but not dizziness or headache (yet). His ears started ringing about 9 months ago and he was seen last month by ENT who said it was common in teenagers (although it rang alarm bells for me). He recently had 2 suspected ocular migraines and severe fatigue. Last week he “zoned out,” felt time had skipped without him whilst travelling in the car and became very fatigued after. It really upset and scared him the GP was a bit stumped. Last night he went to A&E as he had “zoned out” twice and didn’t know if he had passed out or fallen asleep, was very confused, fatigued and looked like he wouldcollapse. All his bloods, blood pressure, ECG were normal. The doctor suggested we ask the GP to refer him to neurology but the likely wait is 30 weeks to a year so we’d like to have him seen sooner. He is at that awkward age where most neurologists won’t see him until he is 18. Does anyone have experience of a good paediatric neurologist in the SE/London? Or suggest what is wrong - I suspect a silent type of migraine (or perhaps petit mal?)
He is starting 6th form college this week (on his own) and is terrified it will happen there.