Many thanks for all your help and to others who posted on here. I would never have thought to have visited London if it wasn’t for your suggestion to do so so many thanks again.
Nope no reason. They tested for Toxoplasmosis due to the scarring on my eye but that came back negative. She said that whatever damaged my hearing at 2 years old could have done the same to my balance organs and it was only as I got older this became noticeable and of course this hit me first time when I was 21 so that’s 30 years ago. I guess maybe either the whooping cough vaccination could have given a negative reaction or maybe even a cold or a virus could have done it but there isn’t a way to know for sure. It would be interesting to know if any other people on this site lost some of their hearing after early life vaccinations and have been diagnosed with similar later in life, that would be some poll !!!
Having said that I could count myself fortunate in some ways. A virus affected an old friend of mines heart several years ago and he passed away only a few years after that so if it is a virus or cold that was my cause maybe I should just be thankful it hot my balance organs rather that something more important. I guess medical science is full of “don’t know why’s” and that’s unfortunately why there isn’t a one cure fits all for this “vertigo”.
It’s a shame that is isn’t seen as a recognised disability though because it can affect people (as we see on here) just as badly as other conditions that are more common knowledge. As I probably have said before at my worst my claim for Employment and Support Allowance was thrown out even though I couldn’t walk in a straight line. It’s certainly an unknown and ignored condition.
I’m still not back into full time work as yet so maybe I should set up a charity of sorts but I wouldn’t know where to start!!