First acute balance issues: post-partum, a few years ago
Number & duration of acute phase(s): was dizzy for two-three months then it went away
Any suspicious physical event/trauma leading up to dizziness: wisdom tooth removal
Start of chronic phase: July 2018
Age at chronic onset: early thirties
Started medication: Dec 2018
Stopped medication: -
Number & type of consultants seen to date: ENT, physio, neurologist
Diagnoses received (one I’m “running with” first): vestibular neuritis, migraine associated vertigo
Medications used successfully for MAV: trying propranolol and nortriptyline
Failed medications for MAV:
Non-pharmalogical treatment tried which helped: trying migraine diet and magnesium
Non-pharmalogical treatment tried which didn’t seem to help :
Dietary triggers identified: caffeine possibly.
Any hearing loss in either ear: none
Persistent or intermittent tinnitus and character: none
Other chronic conditions I’m suffering from: none
Medication I’m taking for other conditions: none
Any personal history of migraines: sick headaches offset by stress, few times a year
Any family history of migraines: yes
Any history of ear problems: no
How did friends, family, and doctors react to your symptoms?: friends and family supportive. Marriage broke down 6 months into illness. Also have a close family member with long-term dizziness, who I’ve found incredibly supportive
Thought I might start a diary too. I’ve been reading the other ones and it’s been giving me hope things can improve. I hope I can give back to the community one day through a recovery story. This is the darkest time of my life and hope is what keeps me going.
So for me the story starts a few years ago, post-partum. Had dizziness for 2-3 months, which gradually faded away. ENT thinks I had vestibular neuritis then.
Then had several completely, 100% clear years, but did put my body through a lot of stress from various things.
Then about 6 months ago, I had a tooth out, and two days later, dizziness was there — it felt exactly the same as the first time round, only my brain was different, in a kind of deep fog.
Two weeks in, I travelled abroad to stay with family. Symptoms cleared, which felt like a complete miracle. I was 100% for a week or so. I truly thought I’d seen the last of the dizzies, and probably overdid things. After hoovering the whole house one day, I felt the dizziness and unsteadiness creep back in. I’ve been rocking and swaying ever since.
I tried to carry on living life and fulfill all my obligations but got steadily worse with headaches setting in.
Had my ears tested. All fine there. Diagnosis, probable MAV. Have started taking propranolol 80 mg, now for five weeks. Still very dizzy. Am also having to prepare for becoming single mum as marriage has now broken up.
So this is where I’m at… it’s a bit doom and gloom but I truly have hope that I’ll be posting here and have positive things to tell you, and that new members one day will see how far I’ve come, and myself of course
Oh and meant to say am eating soul crushing migraine diet now too and have cut out all caffeine but one cup of bitter decaf coffee in the morning.