Continuing the discussion from I feel like i am different to everyone else:
I’m really getting to wonder about this being bedridden. It’s happened to me numerous times and I find it’s very soul destroying and depressing. I know sometimes it’s necessary, absolutely necessary but really, for a whole host of reasons, the human body is designed to be on the move.
Over the years my criteria have changed for staying in bed. The first doctor I saw with MAV who diagnosed me as BPPV told me categorically never to go to bed until it stopped. But to sit up straight in an upright chair all night if need be. I tried to but I cannot sleep sitting upright and soon the attacks were 72 hours duration so I’d creep off to bed overnight. Years later another doctor said ‘Bed and stay there’. I certainly needed bed when very acute. I couldn’t move a muscle or open an eye for days and had no balance to stand/get myself to the bathroom at all. Couldn’t lift head from pillow to drink yet alone stand for days on end. Couldn’t stand light, noise, movement. Even the thought of TV turned the stomach. My criteria as each attack receded a little was always if I could get to the bathroom unassisted, I could get up, sit in chair downstairs-and observe if nothing else. Once medicated things did improve and often criteria became,provided when I stood up in the bathroom the rear head pressure was just bearable, I could get up and be downstairs in the real world. If nothing so much better psychologically. Also I discovered much later so much better physically too. The amount of bone density and muscle mass lost during a short period of confinement in bed is alarming!
I’ve had MAV over fifteen years as bad as many and I suspect worse than most so I’m sympathetic so please don’t think me too hard when I say being miserable/fed up/depressed by MAV symptoms shouldn’t keep one in bed. We all need to make it a last resort. Helen