First of all, I’m sorry to hear that you have MAV, but welcome to this forum. You will find a lot of great information here about this condition that will help you tremendously and excellent support which you will need throughout this process. What I would first recommend is reading the **10 Commandments **at the Top of this page. It was just recently written and really has some fantastic advice. I wish this was here when I was first diagnosed with MAV back in February of 2012.
I have head of that Dr on this forum and have not seen him personally but I know a lot of people in the UK have seen him and I’m sure some will answer here and give you their opinion. I believe I have heard he is a good dr for this illness. Please know that there is light at the end of the tunnel and eventually you will find the right med or the right combination of meds that will get you back to feeling normal or at least a lot closer to normal than you are right now. What I would recommend is to read some of the success stories on here. When I was at my lowest point, that is what I did to help with my feeling of hopelessness. I was bedridden and so depressed and literally felt like I was dying. Than I finally got a diagnosis and found this forum. You are lucky that got a diagnosis so early and also found this forum. Here are my biggest peices of advice… Start a medication treatment plan with your Dr and don’t read all the hype about the side effects because that will just scare you etc etc. Give each medication a fair amount of time to see if it works. Just try to be strong and endure the side effects until they wear off unless of course they are lasting longer than a couple weeks or are of concern. Also, just trust your diagnosis and don’t spend too much time on the internet trying to find other causes because it will just drive you crazy. This forum really has the best resources for all you need to know about this condition. Scott has spent sooo much time and there is everything you will ever need to know right here. And best of all, when you are down, you can ask for support, and we are all here and we all understand. Many of us are coping with the same crap of have dealt with it at some time and have gotten better. Above all, do what you can to keep your emotional state of mind strong because that will be the hardest struggle while you are trying to get better. And lastly, never ever give up because you can and will get better. It took me a few different medications but I finally found effexor and am at 80-90% on most days. I am currently coming off of topamax so I’m not feeling good right now, but once that is out of my stystem, hopefully I’ll be back. I was in very very bad shape and have been on medical leave from work for almost a year now. Effexor took a very long time to work so that’s why I say, please give it time.
Hang in there… when is your Appt with DR. S?