I’ve been keeping up with your posts and I’m sorry to hear your symptoms are starting to hit harder again. How long will it take for the diuretic that you just started to kick in? I was hoping your symptoms would alleviate and heal much sooner for you.
As for me, I saw Dr. Rauch in October and he confirmed it’s vestibular migraines and not Menieres Disease since he had seen the copies of my hearing test, so not much else came from that visit. He wasn’t able to suggest many supplements or background on them, but he handed me a packet about the migraine diet (It was the same packet I received from Yale University). I do have another visit with the Neurologist at Yale University in late November which I want to ask him about CoQ and tell him my progress, since he’s the one who put me onto Vitamin B2 which helped with reducing the intermittent ear pain.
I’m still kind of sinking (imbalance when walking some days, sometimes the glitchy ohhh what was that for imbalance sensation out of nowhere from a motion) (rainy day build ups and days of make my head feel like a helium balloon while being very motion sensitive when that happens and also having my head in a tight vice, with the comings and goings of headaches forming) and swimming (clear days where the pressure is consistent, just tiny glitch motion sometimes).
I haven’t had any full blown vertigo spinning since the last time in early August when I took the magnesium pill which was recommended to prevent migraines, however, I was visiting my brother today at his work and I’m unsure if the dessert which I never had before - Waffle Cheesecake (Very unsure of the additional hidden ingredients - no label. it was gooey caramel, almonds wrapped around cheesecake. Needless to say, I’ve had cheesecake alone successfully before) (eaten 1 hr 20 mins before the episode, which usually I notice slight symptoms 15-20 mins after eating anything not OK) I had caused 2 seconds of vertigo or if it’s the change of seasons in lovely New England + fluorescent lighting that I was under for a good 2 hours when I visited him. When it happened I grabbed his shoulder and he kind of said “what the ?” then he figured I was having an episode as he looked over at me and said “you have to go?” I started walking towards the door to be in the outside world and it subsided. It scared me for sure and I was jittery after for a good 30 mins. I noticed my visual vibration sensation increased too after it happened and also my visual snow appeared in daylight. Right before it occurred I started getting slight zaps / pain as if a migraine was trying to form in the back of my head and moving towards the front and I got really imbalanced rapidly, then out of nowhere the vertigo occurred.
As I write this tonight, I dealt with inner ear fullness around 7 pm (the inner ear fullness usually occurs once in awhile, almost daily so I think nothing of it and that it’ll subside, as a side note, the liquid coming out of my ear feeling occurred a couple times when I was visiting my brother at his work), which then did the feeling of blowing cold air in my ear/sensation of liquid coming out of my ear around 8 pm as it reduced. I showered around 10 pm and that’s when symptoms started to come back-- it started to feel like walking on marshmallows in the shower and the motion sensitivity started to heighten-- I was nervous the room was going to twirl. I quickly rinsed off, then got out. After the shower I had a heightened sense of anxiousness. I tried laying down for a bit (45 mins or so) to help alleviate the feeling but still felt a tad on edge. I continued to lay down and read to catch up on everyone’s posts and the symptoms started to slowly but surely subside. I’m a bit better now as I type this post (12:55 AM).