I’ve been dealing with this stuff for 22 years. (I posted my story in a new thread recently, “New member: what’s wrong with me?”) And still don’t know the root cause for mine - my latest diagnosis is vestibular migraine, but after spending some time on these forums and reading all of @turnitaround’s theories I’m now wondering whether it really could be an ear fluid issue. At any rate, I’m lucky because most of the time I have no symptoms at all compared to all of you.
What I’ve learned is that it is as frustrating for the doctors as it is for us. Years ago I ran into an old high school classmate who is now an ENT doctor (general ENT, not specializing in balance disorders). I told him about my vestibular issues. He said, “Dizzy issues are so frustrating. I’ve instructed my staff to only schedule two dizzy patients per day, because that’s all I can handle.”
Recently I spoke with a friend here who is an internal medicine doctor. I asked her which specialist in our town she refers her patients to if they have vestibular problems. She first just looked at me and said, “Ohh, dizzy issues are the worst. They are so hard to diagnose and treat.” I told her that I’ve had some sort of problem for 22 years and she gave me a sort of sad look. She then gave me the name of the clinic where she sends her patients and, unfortunately, it’s the place I’ve already been to, the one that gave me the diagnosis of vestibular migraine.