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#323

Wanted to check in and say I made it through that one. That one sucked and was scary. Took an hour and a half of driving before it settled to residual crap. Got home about 2ish AM. Fell asleep with the room still feeling slightly uneasy. Woke up at 7 am with my back wall moving and said I don’t know if I can seize the day. Went back to sleep til 810ish, then got up and was a bit dizzy walking around with my left ear slightly full but got ready for work and it stated to settle after 25 mins or so but still uneasy and my ear still slightly full. Around noonish I felt a bit better but an uneasy feeling in my stomach like knots earlier and my anxiety kept popping up and down at random from this crap in the morning. I just sat still at my desk and waited for it to pass. Around 2ish I was feeling a bit better-- and so on. Storms came in around 430 so I felt off but that was the normal weather crap which doesn’t give me an anxiety feeling-- just the lightness, motion sensitive feeling. As James would say, it’s just annoying and you’re used to it so let it pass and it will.
Ear pressure is a bit sensitive right now but I’m better than I was last night.

One of my co workers when I told him about it said for me to get a shrink and that it’s all in my head. I said you seem like my older brother who knows nothing about this. I said my brother said for me to see a hypnotherapist. He goes, that’s a good idea. I said, this is physiological, not psychological. I said I’d gladly change with you so I can gulp beers down again and cram pizza in my mouth.


#324

Lot of people will say they do not even wish this illness on there worse of enemies but people like this, i wish they had it for like a week and see there reactions lol.


#325

Give it a month to really settle in.


#326

I’m new to this site so I was wondering if you could clarify what MAV is? I came across this site looking for info about Prozac and Topamax. Whether it was really safe to take them together.


#327

MAV Stands for Migraine Associated Vertigo aka Vestibular Migraine - more or less, not quite the same but treatment usually is. Regarding your question about safety of taking Prozac and Topamax. Might be best to ask a pharmacist. Haven’t noticed @Luclyd1 posting recently so I wouldn’t rely on a swift reply.


#328

Welcome to the board. The welcome page, explanation of the scope of the site and definition of MAV is here:

There may be people on this board with experience of taking those together.


#329

@turnitaround

I’ve been pondering since having that issue with the tiny tiniest bit of mouth wash incident… Whyyy does food of any amount cause such bizarre / uncomfortable unexplainable symptoms?!


#330

For me the answer is allergies, intolerances and inflammation.


#331

But how tho and why does the body now react this way all of a sudden?
All it took for me was an edible which basically made this massive change to my being and now everything I’m sensitive to, even the tiniest of doses of food or whatever. How did an edible alter my entire being? And why does food/any substance react this way now for me? I’m curious behind the science as to why such a tiny amount of anything like food or whatever (mouth wash) sends a person into an unexplainable symptom rage for a short period of time.

I just wish there was a way to convert the brain or whatever it may be back to “absolute normal”.


#332

I think it’s sort of a catalyst or domino sort of thing. I think you can recover and reclaim some items you’ve lost or set aside. Though some things, like eggs for me, are probably always off the table.


#333

As I’ve speculated on many an occasion, MAV may well be an issue with homeostasis (and it’s knock-on effect within the inner ear then the brain). Perhaps this mouth wash was particularly disruptive in this regard? I’d stay away from it and see if that calms things down?

Another possibility is that it is confirmation bias and that it was just an unfortunate coincidence?


#334

Hi

Not familiar with yr history. Could as @flutters said well be allergy. Check what’s in the mouth wash.

Actually what you put in yr mouth however small is much more important than we think. Years ago I was admitted to hospital as an emergency with severe abdominal pain (doctor thought gall bladder). When I saw consultant in Emergency his first question: really it was. ‘Have you changed your toothpaste recently?’. Honest. I couldnt believe it. Thought I had been admtted to the wrong department!

Do have a read of thewaltoncentre.nhs.uk website ‘migraine - a comprehensive guide’. Might give you some understanding of what might be going on, couple of quotes

‘The person with a tendency to having migraine will become aware and will be less tolerant to the normal nerve signals from within the body’

‘Increased awareness of ‘normal body sensations’ in migraine’

‘Increased awareness of normal feelings with the gut’

and so on. ‘Amplification’

With unstable MAV as the neurologist told me ‘goes a bit hyper’. I had extreme photophobia and even on a rainy winters day entered her office wearing a hat and 2 pairs of sunglasses, top ones full wraparound. It only took the slightest blink of light to make me 10 times more dizzy and nauseous. So when MAV winds it all up, it don’t take much of anything. Preventatives have helped me alot.


Needing information
#335

Interesting thoughts.
As a caveat, I never had food allergies/med sensitivity previous to the edible taken in June 2018.

I don’t drink mouth wash on the daily lol – it was just the slightest bit I didn’t spit out … I’m not using the mouth wash anymore to avoid that issue again, but that’s besides the point. I’m curious as to why small bits of food or whatever has such a great reaction once digested. I had been doing mouth wash for some time, but oops, digested such a small amount one day and boom-- massive issue for a good hour and a half. I had 2 small white chocolate morsels back in Feb 2019 or so and that was not a fun night. It wasn’t even real chocolate!
Neurologist said the edible marijuana was the catalyst, but how and why did it create such a permanent state of change? And why is that anything that’s digested now in even the smallest amounts create such a vast reaction?

I only take 400 mg B2 a day in the mornings
and 2k Vitamin D3.
No prescriptions meds, so I know my tolerances and I know when something effects me (usually within 10 mins of digestion).
I use Theraspecs for work, but this week with the up and down weather I’ve had 2 migraines by end of work day (330ish) (pain 1st time in the week, then pain and dizziness yesterday ((2nd migraine)). It’s becoming more of a rare occurrence to feel the migraines and that much dizziness so prescription meds are out of the question. And once I left work the dizziness subsided, so I feel like my threshold was peaked and even though I had the glasses on the florescent lights were just breaking the barrier… and also possibly due to needing a darker tint at that moment in time would help. This wasn’t a one time occurrence – this maybe has happened 3-4x since starting my job in May.

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As a side note, still dealing with the prostate inflammation too since they said it was viral and would last 4-8 weeks. I had a lot of sugar last weekend and it acted it up again-- was hoping I was in the clear.:grimacing:


#336

Haha - it would be great if there was a reset button!


#337

Agreed.

@GetBetter
@turnitaround
@flutters
@Manatee
I’ve been wondering, if I was okay with Lidocaine (if that was what I was given, I want to call the doctor from March and ask what brand and dose he gave me) was okay with my finger and didn’t set me off at all-- would it be the same if I need to get dental work done too if they use lidocaine for that?


#338

Sorry, don’t know the answer to that one. Lidocaine is on my ‘no’ list along with Neosporin.


#339

I don’t know whether they use Lidocaine for dental work. Can’t hurt to ask, of course.

I’m lucky to not have had many dental issues in my lifetime. Also, for minor cavities, I tell the dentist to forget the anesthetic and just drill and get it over with.

Hey, @Space_Cadet, if you’re still having the prostatitis issue, I just happened to read this. It’s from a 10-year-old article so you’ll want to do a little research to see whether they still consider this supplement to be useful:

“See your urologist, who will likely prescribe a round of anti-inflammatories or antibiotics. If it lingers, try a supplement called quercetin. In a UCLA study, 67 percent of men with chronic prostatitis experienced a significant improvement in their symptoms when they took 500 milligrams of the antioxidant twice a day for a month. Try a brand such as Prosta-Q.”

As for your question about the edible marijuana, I don’t know much about that stuff but I suspect there’s no quality-controlled manufacturing process involved in producing it, so who knows what other ingredients could have been in it. I mean, maybe it contained some sort of pesticide residue or, well, who knows.


#340

@Space_Cadet you should checkout my initial post, as all this started for me with taking a drug as well. And overnight I had severe sensitivity to food and supplements too. It was like the sensory systems became scrambled overnight and everything felt different and so my nerves were on high alert which made things worse and eventually gave me massive migraines and dizziness. It wasn’t food allergies.


#341

@ander454
Yup, so you get where I’m coming from. How do we reverse that back? lol
I should’ve stuck to alcohol:smirk:


#342

That’s very interesting that two of you have had that experience. Have you googled those substances and seen if they cause any significant acute issues that might give you a clue as to what is going on? Have you sought suitable specialists that might be able to work out their potential impact?