I had a question about working out and headphones, previous to this exciting situation of dizziness occurring I used in-ear headphones. Now that I’m concerned of anything applying pressure to my ears or messing with my ears in general I’m curious about what you use.
As an update,
Early last week I set up an appt to see Dr. Steven Rauch at Harvard. The appointment is not until Oct 13, but hopefully sooner if someone cancels.
Last Thursday, 8/31, I decided to go to bed early but I was hungry because I skipped dinner. I was starting to get hungry as I was falling asleep (10 PM). I woke up with a very angry brain at 230 am and was quite dizzy/imbalanced/walls shifting and put into a frantic state of mind where I had very heightened fear and an impending feeling as if I was going to die. This feeling was much worse than I am used to. I haven’t felt this great a fear of feeling since July 1st. I quickly made oatmeal and I noticed I couldn’t be around the microwave because the noise was making it worse and creating more dizziness. I couldn’t have lights on either cause it was making it even worse. It was very scary! I had a bowl of oatmeal then quickly got to my car to drive, since being in motion while driving I have control and don’t notice any dizzy symptoms besides the nausea. However, at stop lights, or stop signs I notice a push and pull feeling. I drove for about an hour and a half then got home and was able to sleep after about 30 mins or so. I was slightly off more than usual for a couple days from that incident and learned my lesson on never letting my stomach get hunger pangs!
The evening of 9/4 when I was finally going to sleep around midnight which has now been my usual rest time I started to get a slightly off feeling. It took a long time to fall asleep and it started to get worse. I had to crack a door with a light on so some light would come into the room (sometimes trying to sleep in complete darkness now starts to give me an off feeling, I’m not sure how to explain it) but not too much cause I was starting to get light sensitive. Couldn’t have the overhead fan on because that would start to make me feel as if I’m twisting. I noticed laying down that my tinnitus in my left ear was getting even louder than usual. Also, my visual snow (thanks to a post on here since I was previously explaining this as white noise from a tv to people) I get in darkness increased in transparency to being even more visual. I finally fell asleep briefly but woke up at 230 am in a complete sweat and my head was very flush/cold and I was in a very frantic state and I couldn’t control that feeling (I hate when my brain takes over complete control). I knew I was having symptoms.
I was unsure why this occurred. I had white wine that night on 9/4 and I thought maybe it happened because of that (had white wine once before a couple weeks ago and fared well)? But I spoke to my father yesterday on 9/5 and he said he also woke up around 2 am and couldn’t sleep because of his sinuses and the pressure. A big storm was coming in on 9/5 and there was a lot of pressure throughout the day.
9/5 I noticed throughout the day I felt very off (more so than regular days) and my neck in the morning felt extremely tight / in pain! I tried to rub it and put ice on it which both created slight dizziness when I applied pressure.
I felt the swaying feeling when sitting at home as the storm was rolling in and my brain felt like it was being compressed.
9/6 - I noticed my neck now feels like it’s been bruised from the tightening of muscles yesterday. I still feel a bit floaty today since the storm had passed last night and the crummy weather is lingering around.
Does anyone else notice their tinnitus increases when laying down?
Does anyone else notice their symptoms and such increase at night?
Does anyone else wake up around 2 am every night sometimes with symptoms and sometimes not?
Is everyone with MAV a weather vane?
Thanks again for everyone who listened to my rant.
This has been hard with family, since some in my family are not supportive or say just try not to think about it, or easily discredit how I’m feeling or tell me not to mention how I’m feeling to them if I’m going through it while around them.