Thought I’d cut and paste something in, here’s what I wrote on another thread in December:
Just over 2 years of MAV and I’m now 95% WITHOUT MEDS. Very confident of further improvement!
WHAT’S GONE: No more nausea, ear pressure, ear pain, extra tinnitus on bending down, hearing distortion in loud places, feeling of pressure in ear when driving, vestibular attacks, migraines, anxiety, rocking, marshmallow floor, push/pull, vertigo, spinning or attacks of any time (touch wood!). All these symptoms are gone! Able to walk through malls and supermarkets with few issues (mild discomfort on occasion)
WHAT’S ONGOING: Only fluctuating tinnitus, occasional migraine brain rumbles/discomfort (usually due to artificial light), mild head positional discomfort in bed, some mild episodes of motion intolerance and mild imbalance remain! I can use the computer and watch video almost without issue. Oh and I still get a feeling of a little fluid in my middle ear every morning or at night if I get up for bathroom, but its much less than it was.
DIET: On diet I am fairly strict on excluding alcohol and caffeine, but have milk and chocolate. I play lip service to low salt diet when I feel like it - but sometimes am weak and have a packet of crisps or order a takeaway!
BRIEF HISTORY: Also started fall of 2015 (Spring if you include original bout of Severe imbalance which lasted 5 weeks). Got worse for a year with mounting symptoms. Especially bad April 2016 when I had 15 hour long migraines/Vestibular attacks every three days. Couldn’t walk through supermarkets or malls without immense discomfort. Started Ami (10mg moving up to 20mg). Quality of life improved but symptoms still bad. Lots of scary relapses. Had a crazy relapse after 6 months of no attacks. Disheartening. Imbalance improved very slowly though. However started to get nearly daily positional vertigo resolved after about 6 months with sleep position discipline. Even so 1.5 years after starting Ami, in fall 2017 I was able to stop medication. Titrating down was easy but imbalance got a little more obvious and was tempting to restart but persevered. Vindicated as got through it. Now better than ever and on no meds.
IMPORTANT FACTORS I BELIEVE HAVE HELPED RECOVERY (so far): stopped using headphones, careful when bending over, careful to avoid loud noise, keep head up in bed, do not cook with salt, drink lots of herbal tea, cut out alcohol, get out as much as possible and don’t restrict activity, have been out on walks even when when feeling totally rubbish, TIME!, low stress levels (very important to get a grip of anxiety and stress imho) = OPTIMISM! (“This too shall pass!”)