My Journey started in December 2016, 6 weeks after giving birth to my boy. One day some weird sensation happened in my head, I thought “I am tired” but after a few weeks of weird symptoms I went to see the local GP. Mainly my symptoms were a fraction of seconds of vertigo (I never had the room spinning), unsteadiness, brain zaps and problems with my vision, like everything was unreal around me, phonofobia and photofobia and massive brain fog.
First GP sent me home with a nose spray. I then went to see privately 3 ENT and every one had his own diagnosis, including: go for a holiday.
Finally in May 2017 I went to see dr S. A few test and VOILA… vestibular migraine. No damage to the vestibular system (1 good news).
Anyway, my first drug was gabapentin … 1 pill was enough to trow the packet in the rubbish. The next one was amitriptyline… was ok but wayyyy to tired to live on it. We switched to nortriptyline and started 10 mg and went up to 60 mg. I had minor improvements, so Dr S. decided to add effexor. On the 2nd day I was already better. I reached 37.5 in 3 weeks and was really feeling great. The 24/7 was gone, I had symptoms and I had bad days but I could start having my life back. Super markets were a big no-no for me at the time.
In december 2017 I started VRT with Dr. Pavlou in London, she is great and with her and effexor I reached 90%.
I decided to see a Funtional Dr., expensive but she was really worth it. I finally got a blood test done after 1 year and half and I had loads of deficiencies. I was taking 18 supplements a day. This was March 2018.
If I could go back I would start my journey with the functional doctor and try to avoid being on 2 drugs.
Anyway, by May I am shopping in big groceries stores, listening to music, and doing normal things.
Should I be writing in successful stories? I don’t feel I am there yet. I am still on 50 mg nort and 37.5 effexor and I still get symptoms, not many… but I do:
I sometime have a weird feeling on the left side of the head, especially the eye. On a bad day I have it on both eyes.
Phonofobia is still a thing for me, at Xmas I suffered a bit.
Anyway, despite my lovely functional dr said no changes for now, yesterday I took 45 mg nort. So will see… hoping not to crash any time soon but with this illness who knows. If I get symptoms maybe I increase again (?)
Anyway I wanted to share my story here.