I thought I would update as I have not been on in a while…
Well it’s been around a year and half since I’ve had chronic MAV, my symptoms have been- rocking boat dizziness, ping pong ball sensation in head, woozy head, derealisation, chronic ear fullness/pressure, blurry vision, visual auras- bright lights, zig zags, light sensitivity, less frequent headache in forehead and nausea.
I had all the ear tests and mri done and it was ruled that I have Vestibular Migraine. This was hard to accept at the start as I could not believe a migraine was causing these symptoms 24/7
Today I can report I have accepted this diagnosis and have made some good progress with my VM.
I no longer need to lean against the sink to brush my teeth, I no longer need to wear sunglasses at night when I am driving because the car lights hurting my eyes. I can now go for a walk/run. I can now sit outside on the beach. I have gone on holiday, caught 5 flights. I am working full-time.
I believe topamax 100mg a day has given me some of my quality of life back and my attitude to fight for my life and also the acceptance that I do have a different life now and my ability to adapt around this condition.
This illness isn’t what I envisioned my life to be but it has sure taught me some strength and humility that I wouldn’t have attained from any where else.