Well hello again - it’s been a while since I was on here last.
Symptoms - practically the same. Unchanged. Do I have vestibular migraine or MdDS? I haven’t got a clue! That’s a diagnosis that seems to be up in the air! As a reminder to all who may be interested, my symptoms include a swaying, tilting vision (everything I look at wants to drift to the left) with my head occasionally feeling like a buoy at sea! 24-7 on going ever since I stepped off a long haul flight (hence MdDS theory)… However, unlike MdDS patients, my balance is very good and more or less normal. Correct me if i’m wrong but I can’t imagine many MdDS patients able to stand on one leg with their eyes closed!
I have stopped vestibular rehab as believe me, this exacerbated my symptoms. I haven’t really tried much in line of treatments but had attempted nortriptyline (10mg) and propranolol (80mg) which never provided any benefit. Currently looking into functional medicine as I would prefer to determine any issues concerning my overall health rather than jumping into meds again however, this is beginning to get on my nerves and it’s particularly frustrating having to work in a laboratory (i’m a clinical research scientist) with everything bobbing about the place. So, the questions I would like to ask are:
Does this sound like MAV or MdDS? Isn’t MdDS more a ‘balance’ issue rather than a ‘seeing movement’ issue? Also, vestibular rehab (gaze instability exercises) made me really dizzy. Is this typical of MdDS? Or more like MAV? I am better seeing motion and in motion. These symptoms are at their max intensity when I am still and looking at stationary objects.
Can MAV be a chronic 24/7 disorder rather than an intermittent condition?
And if I do decide to trial the meds again - who has had good results for the visual rubbish including both the visual movements and sensitivity - for both MAV and MdDS?
Thank you loads!