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MAV or anxiety?


#17

This is an excellent webpage: http://www.drweil.com/drw/u/ART03106/Migraine-Headaches.html
I like Dr. Weil in general. I’m doing tons better just with magnesium glycinate (400mg), CoQ10 (400mg) and B2 (200mg) per day. I may up the B2 to see if I get even better results. This has been a godsend. Dr Weil is a very good doctor! I am not on any other meds and I have eaten trigger foods without major problems now that I’m supplementing with these. My skin seems a bit more acne prone since starting the vitamins, but I don’t really care. It might also be dairy I’m eating. Not sure. xx


#18

Hello Scotti, yes please send me the link to the magnesium glycinate. Thanks for all your help.


#19

Hello liv85

I will try all the suppliments suggested and see how I get on. Thanks


#20

They are super helpful. I feel really improved on the magnesium glycinate and coq10. That said, whenever I drink espresso (or anything high in salycitates or tyramine) I get more symptoms. It’s super weird. I kind of give up on trying to figure it out but I can live my life with these natural supplements pretty well. I’m about 70% normal without the trigger foods… as much as I enjoy coffee :frowning: I may try to up the dose of mag glycinate to 800mg for a couple weeks to see if that does the trick. It definitely has released a ton of head pressure and odd symptoms with light sensitivity… xx


#21

Really happy to hear this, Liv :). I hope it continues! Did you get off the Gaba? Did you have to taper or you went cold turkey?


#22

Thanks so much, Asli!! I was on such a low dose I could quit cold turkey! (100mg three times a day). The ONLY problem with my natural supplement regimen that is working so well is the (ahem) laxative effect of either CoQ10 at 400mg or the magnesium (although this type is supposed to be not as bad). OMG. I am cutting out CoQ10 tomorrow to see if the magnesium is helping me more and to find out which one is the culprit. This saga never ends… :slight_smile: xx


#23

Awesome! Well, the likely culprit is the magnesium since it is a laxative, but you’ll find out.

Liv, I remember you saying that you had MAV and didn’t treat it with meds for a couple of years. Do you think the gaba took you to a better place as a baseline? I know the supps are helping you that’s what you believe that is keeping you well (which is great); however, would you think that if you had never taken gaba, you would be doing as well with the supps alone or the gaba did improve you with lasting effects?

Thanks, dear!


#24

Hey there! The magnesium is working on its own better than gaba or any of the other medicines ever did, and I guess it’s less toxic (safe for pregnancy) but on the other hand, it’s super crazy with the digestion. I’m just hoping that it was the CoQ10 that was doing that, and maybe that will go away if I cut that one out! Hard to tell which.

The gaba has a very short half life and I don’t think it brought me down to a baseline because the day I went off of it without magnesium once, I was super dizzy and off balance. So I think it’s the magnesium, CoQ10 combo. Or just the magnesium. I took 800mg total of mag glycinate today and seem to be doing well xx


#25

Hey Liv -

sounds good. Best wishes with the 800 mg :).

Could you post for us the brand of mag. gly. you are using to make sure we try the same.

Thanks!


#26

Hi Asli!
Sure! Happy to be of help! The brands I got were at Whole Foods but they might be harder to find at other stores. The are KAL brand mag glycinate and and the 365Everday (Whole foods brand) of CoQ10 (400mg of that plus vitamin E). I am not taking the CoQ10 today to see which of them was actually helping more and which was causing the laxative issues. I think at high doses CoQ10 can also do that, so I might try lowering my dose if that’s the one that was the issue. Glycinate is not supposed to have the laxative effect, so hopefully that’s not the one.
Try them out! I’ve been doing better than I’ve been doing in three years just on them. I even had 2 beers last night when I went out and was OK. I’m never totally 100% the way I was before MAV hit, but I will be OK like this I think.
Liv xx


#27

Hi liv,

What are your symptoms and what medication have you tried? How long have you had MAV for?

X


#28

Hey there!

I had exactly the same onset as you - that’s how I felt exactly. I think it’s a viral attack that damages the nerves and makes them overly sensitive. That’s the cause of MAV in my view, but I don’t have medical proof aside from journals that cite Ramsay-Hunt without the rash as causing neurological symptoms - particularly in young people who don’t present with a rash and therefore don’t get proper diagnosis and/or quick anti-viral treatment. My doctor thought I just had simple vestibular neuritis but more nerves were affected than my inner ear nerves/balance nerves - my ocular nerves became highly sensitive (hence the light sensitivity) and the cochlear nerves cause the clicking, and the vestibular nerve is aggravated by stimuli - it seems like they are all connected in the brainstem. So that when one nerve is aggravated by a stimuli the other ones get in the action to.

Good news though, which I wish I had known a long time ago (this started in April 2013), 400mg of magnesium glycinate is still working wonders (I don’t know how it calms the nerves down, but it DOES). 300-400 mg of CoQ10 also is something I’m taking, and that could also be helping calm the nerves. My job requires me to be under intense fluorescent lights for long periods of time, so I am so grateful this is working. I do get anxiety still that I will get really off balance but I should just put it out of my mind since this natural route is working better than nortriptyline or gabapentin ever did for me - I also tried topamax but had very adverse reactions to that psychologically. I’m just highly med sensitive though, so if you want to go the medicine route, go ahead - I just think ironically the supplements are much more effective in suppressing my MAV even after I’ve tried the meds. :slight_smile:

I may experiment with 400mg of mag glycinate (I take the KAL brand) 2 times a day to see if that helps even more. I succumbed to coffee today because I’m jet lagged (flying was fine with the magnesium too!) and that mainly exacerbates my anxiety levels, which is bad for the MAV, since I act like a spaz, but that and MSG are really the only things that seem to increase my head pressure. I don’t know about the other foods. I just can’t figure that out. But I recommend these supplements.

You’re lucky to have kids - I think I read you’re a stay at home mom? I wish I could control my environment - I unfortunately have to go to the office and archives a lot so I’m just grateful that these supplements are helping me feel a lot better. I still get some symptoms (head pulling a little bit, some ear crackling and some eye pressure), but nothing like before. Good luck and try the supplements before the medicines if you can! They are much easier on the body, I think. But watch out for non-glycinate magnesium, as it does have a laxative effect.

Liv xx


#29

Thanks, Liv.

I’ll wait to hear your next update regarding your current experiment with the Mg (hope it continues to go so well!) before I make the decision to buy.

I checked out Amazon and found quite a few options, including the KAL (probably cheaper than at WF, too - you might want to check it out).

Best :slight_smile:


#30

Just jumping in, I have also felt some improvements once I started Magnesium glycinate and B vit. I might switch up the latter, I got a B complex, but is it B2 that people like?

I am also finding the Migraine diet very useful. I have cut out loads of triggers and am making progress there too. I found these two books at my local library (have not read cover to cover, but enough to pick out doable changes):

Heal Your Headache by Dr. David Buchholz
and
The Migraine Brain by Dr. Carolyn Bernstein

Wishing you all a speedy improvement to your symptoms!

(NB from admin: this image links to a product this member has found helpful and at the same time helps fund the site: As an Amazon Associate I earn from qualifying purchases. More recommended products here. Thanks for your support!)

“Heal Your Headache” “The Migraine Brain”
More recommended books here

#31

hi Christine,

yes, those are the most recommended two books on Migraine.

people take B2 for migraines. I used to take a Vit B complex from Whole Foods (not for migrines, didn’t have them then) and ended up with B6 toxicity which started the whole downturn in my health, culminating in the MAV at the moment.


#32

Hi Christine, yes I think it’s b2 that is recommended at 400mg per day? I felt better those days I was doing it with the mag and coq10. But I wasn’t sure which think was causing my stomach to get upset. Maybe I’ll throw back in b2. My nuero prescribed me gabapentin after several other drugs and it also helped at 100mg 3x a day. I may go back on it for the nicely calming mood qualities if nothing else…as you know this condition creates a lot of anxiety that I still feel even when I’m doing better because I am so always waiting for symptoms to get worse (even when they might not!) it’s also just the memory of feeling so badly for three yrs. on a positive note though, I’m much healthier overall since I’m do attentive to my health now…I’m sure you all are too in a similar way. Xx


#33

Hi Liv,

I know you once said you felt better after the first the first dose of Gaba. Does it mean, you didn’t feel ups and downs (all else constant - meaning not overtly being triggered by something you know about) after that until the meds evened out?

Also, Gaba doesn’t depress you? Isn’t it a CNS downer?

Thanks.


#34

Hey Asli, yes I can feel ups and downs no matter what. Lights and caffeine are the main triggers. gaba and magnesium both help a lot- magnesium even more so for me in terms of lights etc Gaba just makes me a little sleepy but not depressed. just more calm. I kind of miss it! The only side effect at my low dose was a bit if water retention in my lower body but nothing else. I was worried about it for pregnancy but I am not planning to have kids any time soon, so I might go back on it to maximize my feeling of recovery in combo w the other supplements. Gab was the only drug I can tolerate. Xx


#35

http://www.bodykind.com/product/298-High-Absorption-Magnesium-240-x-100mg-Tablets.aspx

I get these ones.


#36

I have found that migraine supplements work better than medications in my case. Have tried botox and all sorts of medications such as TCA’s, Anti seizure, abortive. My most recent med, Pristine did give a slight boost in mood but that was all it did help with. Side effects weren’t worth it. Migraines were not reduced. Slight reduction in intensity but not life changing.

I take a migraine supplement that has Magnesium, Butterbur, Feverfew and B2 and it helps a little. Definitely worth the expense IMO.

I am still trying to figure out if my anxiety is caused by migraines or vice versa. The chicken or the egg dilemma. Have had these migraine issues since I was a kid. I now have a therapist telling me that my illness is psychosomatic. I figure it is worth exploring. But I feel my anxiety is caused by migraines and reducing the anxiety will be hard without having a handle on migraines.