Hello everyone, I’ve been a long sufferer of MAV. I had my first encounter with MAV when I was 21 back in 2001. Happened right after I was prescribed the wrong med by my doctor. I got sick and then got hit MAV right after. I had all usual symptoms: brain fog, Brian burn, light headed, dizzy, blurred vision, Motion sickness Nausea, floor drops etc…the works! I went through every singe test, ear, heart, blood MRI. All clear. I nor did anyone else know what was wrong with me. At the time I didn’t have migraines or any out of the ordinary headaches that Tylenol couldn’t fix. That’s why I didn’t know it was MAV. However it eventually went away by itself after six months.
11 years later in 2012, I was in a high stress job, stress at home trying close a mortgage and sell my current house where the buyer didn’t have the funds on closing. So I had to scramble to relist our house and bridge my new mortgage. All of a sudden MAV came creeping back. Luckily by then I was married to a nurse who had connections with the right specialists. Once again, all tests came back normal. My last specialist and last resort was a neurologist. At the time I didn’t think a nero would be able to figure out what was was wrong with me as again I didn’t have any migraines or headaches that Tylenol couldn’t fix. After my first assessment my Nero told me I have migraines. I didn’t believe her but she told me these kinds of symptoms are also caused my migraines. I went home that night, did my google research on migraines and dizzyness and came across this forum and was so surprised and relieved that I’m wasn’t the only one who had the same symptoms as me. Finally I knew what was wrong with me.
My first attempt at meds was amtytriptyln. After one week of usage I experience my first serious encounter of migraines. I stopped taking the meds right after and started doing more research on meds people were taking and having success with on this forum. At the time it seemed that Sandomigraine had a lot of success. So I asked my Nero if I could be prescribed this med. after a year of MAV, it only took a month for it to start to go away. After 3 months I was feeling 90% which was amazing.
Which brings me to present day. I’ve been on Sandmigraine since then (6mg). Once again in Feb of 2017, it was a very stressful time at work and life. And ofcourse MAV had creeped back even while on Sandomigraine.
What should I try next. I’ve read that Effexor is pretty successful, but am terrified by all the bad media around SSRIs and all the horror stories of withdrawal trying to get off Effexor.
I’ve read Hains process of evaluating MAV.
Has anyone tried Norotriptylin, and or have been on it with Sandomigraine at the same time with success?
Any help would be appreciated !