@Jess09 sorry for delay. I haven’t been on in awhile. Fwiw, POTS (postural orthostatic tachycardia syndrome) does not have to involve hypotension upon standing. Some have this, but some do not. All have tachycardia at times, upon changing to an upright position, after hot showers, etc. There are different subset types of pots that respond better to different meds. My daughter has it. She was diagnosed by a pediatric cardiologist who also specializes in POTS, and he gave me an informational packet on all of this. Not saying that you have this, just clarifying.
Have you had an MRI on your cervical spine in the neck? I’m asking because I have had head neck shoulder pain for many years. I was told fibromyalgia. My migraines have always been left sided. My tinnitus left sided, face pain, etc etc. My left tmj was blamed, as well as migraine. I recently started seeing an upper cervical chiropractor who helped me tremendously. Thing is, the adjustments don’t last or hold, and the pain comes back. The time between improvement has shortened, so I asked my Neuro for neck mri. I got results last week, and it turns out that I have severe multilevel facet degeneration with nerve compression/stenosis. All on the left side! She was surprised, as I am only 50. Also said that all to most of my symptoms including dizziness could be coming from this. I am being referred to spine Dr who will hopefully be able to do injections, or I may need surgery she said. I had planned to post an update of all of this after that appt. I’m hoping that he can help without surgery. I’ve been having the left sided facial pain with stuffy nose, eye twitching, brain fog, head pressure, tinnitus, disequilibrium, imbalance for almost 6yrs now. Always told vestibular migraine and fibromyalgia. In hoping this may be my answer…finally.