Lyme disease. A story with a happy ending

Hi all, I had the positive igenex test cdc and bartonella. I have been on treatment effectively since nov (antibiotics) and have not been on migraine medication since dec. I continue to improve and to this day, know this is and was the cause of my illness. If anyone would like further information about my testing treatment and the controversy behind this disease in the uk please feel free to contact me through this board. I do not want this to cause a all out guns blazing discussion or argument, there is no doubt in mine or my family or my friends eyes and hearts and minds that this was the bugger keeping me down, the proof is in the pudding.

I am consistently getting better, and am grateful for all your support on here, but please. Do not push others away from this condition. If you wish to investigate it, do so yourself. Properly. Talk to other patients, read non biased articles online and make an informed decision. In the end I thought, what is there to loose? And in fact I have gained my life back. This is a serious illness, as is mav, and it is treatable with antibiotics. It is also very misunderstood in the UK and not treated correctly through the NHS.

I was ill for 5-6years before figuring this out of my own accord. Thanks to a friend’s suggestion and a female who posted on here, who I think since has been banned from this forum. If it weren’t for her. I don’t know where I’d be now.

Many Thanks,
And kind words/wishes to you all
Wc

hi wc,

so glad to hear you are feeling better! last i heard i thought u had started topamax and it was helping, but then u had some alcohol and that seemed to mess things up? what happened after that? didnt gabapentin help u for awhile too? have u been taking oral or iv antibiotics? which ones and for how long?

WC, you had this to say in June 2013 in the Success Story thread:

— Begin quote from ____

Hi all, I haven’t been on for a while and as I’m posting in this thread you can all tell why! I have been feeling really well for about 2-4 months now. I can do all normal things. My “bad” days are like what my good days used to be like Andy good days are feeling normal, intact feeling on top of the world. People always ask what got me better but in my life it was a mix of things. Personal and medical. It wasn’t easy and I never thought it would happen but I am living and feeling normal again! Working, socialising, etc. will stay in the meds gabapentin and pizotifen for quite a while to come. It did take a good 6 months on these drugs to see any positive effects!! Xx

— End quote

People who choose to take medical advice from self-designated Lyme “experts” met online should do so at their own risk.

Scott

— Begin quote from “waspcharmer”

I am recovering on Lyme disease treatment, I have not been on migraine medication for 4-5 months. need I say more?

I wish you all well. If anyone would like to contact me, please do not hesitate. I have no issue discussing this rationally and openly, but feel it is not welcome on this board. There are many other causes to mav I’m just happy I found the root cause as I always felt there was something being missed.

all the best and thank you for your support through the toughest times of my life

Wc

— End quote

Waspcharmer,

I’m genuinely happy for you that you are feeling so much better and sincerely hope it continues.

With regards to the Lyme thing I do feel the need to sound a word of warning, at least of not speaking too soon. Last year you posted a success story of feeling well for several months on a migraine protocol (see below). So, you may be cured of Lyme or you may be in remission from migraine. I know some will wonder ‘who cares, as long as WC is feeling well?’ and the answer to that is of course the risks associated to the individual and the community in antibiotic use (particularly long term use) and for others who may be considering investigating the Lyme route to do so armed with all the facts.

The only other thing (and I don’t mean to be pedantic) is that the only cause of MAV is migraine. But you are correct that there are other things which can cause vertigo or MAV-like symptoms.

I do hope you will continue to check in with us to let us know how you are doing over the coming months and wish you ongoing health and happiness.

— Begin quote from “waspcharmer”

Hi all, I haven’t been on for a while and as I’m posting in this thread you can all tell why! I have been feeling really well for about 2-4 months now. I can do all normal things. My “bad” days are like what my good days used to be like Andy good days are feeling normal, intact feeling on top of the world. People always ask what got me better but in my life it was a mix of things. Personal and medical. It wasn’t easy and I never thought it would happen but I am living and feeling normal again! Working, socialising, etc. will stay in the meds gabapentin and pizotifen for quite a while to come. It did take a good 6 months on these drugs to see any positive effects!! Xx

— End quote

Vic