Hi everyone. I’m a newer member here. I’ve yet to be diagnosed with VM/MAV. Two neurologists said that it could be, but not likely because I have 24/7 symptoms and I don’t get headaches. They all think it’s inner ear related. I have an appointment with a neuro-otologist in a week, so hopefully I can get a somewhat proper diagnosis.
Anyway, the hardest thing I’ve been struggling with lately (besides all the physical symptoms) is the feeling of complete loneliness and isolation. It’s really bringing me down and making my depression and anxiety much worse. All of my family and friends cannot relate whatsoever, nor are they very supportive. I’ve actually lost a few friends because I can’t do all the things I used to be able to do. Even when I’m around people, I often feel even more isolated because everyone around me is functioning perfectly and having a great old time while I’m sitting there dizzier than s@$t. I’ve even started to become resentful towards my husband. Just watching him pop out of bed every morning and head to work feeling and functioning like a normal human being almost makes me feel angry at him. I know that’s wrong and I feel bad because he’s been nothing but supportive and AMAZING during all this. But I often wonder why me and not him? Not that I would wish this nightmare on anyone, especially him. Every morning when I open my eyes I have such a feeling of dread in my stomach, it’s unreal. Every day literally feels like Groundhog Day and it’s enough to drive me to complete insanity. I literally feel like I’m going to feel like this forever
Have any of you felt like this? Do you have any advice or ways to cope? I would really appreciate it!
Sorry for such a negative post. I’m just feeling really low and alone today.