@gidlabu, @getbetter, Here in the US I went on short-term disability, at first part days. Note: This is a self-pay disability policy there isn’t any public policy like this. After my vision was severely affected, vomiting was impossible to control, I reached the point where I could not safely transfer from a wheelchair to a toilet, no focus, etc, etc. I did stay home permanently.
My company is what is known as a Prime Contractor to our federal government so we tend to have pretty good employment support. Even though my short-term disability ran out and my long-term was initially denied (reversed many months later on appeal), I still had a job. At our company after one year our HR does terminate people. I was lucky and fell through the cracks.
After some improvement with treatment – specifically effexor – I managed to return to work “up to half-time.”
Two months later my current breakthrough started. I managed 10 hrs last week and 8 the prior week. Quite frankly my level of performance is abyssmal. If I cannot get this breakthrough under control soon, I will likely be terminated. In the US people in my field tend to work very long hours. I have rarely worked as few as 60 hrs/wk. I love my work. I also was a top performer.
In the US getting a new job that will let me vary 0-20 hrs per week will very literally be impossible. Also, most doctors in our neck of the woods will not fill out disability paperwork so at some point LTD will disappear.
I admit it gets me down once in a while (only once in a while – I’m typically a can do personality) that all I want is to work full-time and that the LTD insurance I have been paying for will likely disappear. I just need help until we find a regimen that keeps me mostly at work.
Not to be political but I used to not want our government meddling with our healthcare system. With my new glasses (fl-41pun intended) our system seems to allow doctors, employers and insurance companies alike to deviate from common human decency. I am embarrassed and scared.
@gidlabu, I feel for you. Chronic forms of VM are life destroying. Just keep a positive attitude, fight melancholy with fervor. For me listening to very soft music with noise canceling headphones helps. I’m focusing well at this moment, who knows in an hour? Take those good moments to find a hobby you can tolerate. Enjoy every moment you can steal from this disease. Laugh at it, mock it. Laugh at your situation when you speak gobble-gook. Try to view it with mirth when you can.