Very familiar. Here Is my story and how I diagnosed myself. I originally started with neck and shoulder pain. I then suffered vertigo, disequillibrium, & oscillopsia (images jump)for over 20 yrs intermittently and 24/7 last 4 years. I was 39yrs old when I had the first attack. It took me 24 year’s to figure out that sounds created my symptoms. I have been through many experts in Canada and USA for a diagnosis and most of the experts couldn’t get to a diagnosis. Some of them even prescribed me antidepressants. They tried every antihistamines, neuroleptics and many other drugs to help me. All these just only ruined my liver and kidney. I had every diagnostic text in an ENT book other than exploratory surgery. Being a master’s prepared nurse I refused to accept that diagnosis. I lost my nursing license as I couldn’t go back to work. I then started keeping a very descriptive diary, hour to hour and figured out that it was always certain activities that is producing my symptoms. As a last resort, after a lot of research I started using Silicone ear plugs fo a week (remember it is important to plug only one ear 24/7 at a time for a week so that you can hear and at the same time figure out the problem ear) and I realized that it is low frequency sounds that was giving me the symptoms. Any motorized sounds produced the symptoms, even the sound of a running water, meals (especially the food that makes the sound when you chew, exhaust fans, AC/heater, cars, TV, music etc. I was told I have a supersonic hearing and I was so loud. Hope all of you can give it a try with Silicone plugs and see if it makes any difference. This problem is called Tulio phenomenon. It is caused by either SSCD, perilymph fistula or from a thin bone beside the ear. If it is SSCD you can patch it. For other situations, we don’t have much options other than avoiding the sound entry into that ear. If we do surgery we lose 30 to 40 % of our hearing in that ear. We can have custom made ear silicone ear plugs which causes only 30 to 40 % of hearing loss. If you plan to use it, just only seal the entrance of that ear you plan to block. Please don’t push it into the ear drum. Make sure you air the ear when you are not exposed to the sound (I mean pindrop silence). Now, I only get the symptoms if I am exposed to sounds and I forgot to wear my custom made silicone ear plug. Now I watch TV, drive and is able to go back to my normal routine. Please remember, this is not a medical advice. These suggestions are only for people who had proper testing and treatments before trying this out and only if your treatment is not working. Could you all please let me know through my email (please write “VERTIGO” in subject line so that it doesn’t end up in trash/spam)below if the Silicone plug worked for you as I would like to join a neurotology group to further the research on Vertigo/disequillibrium and ocillopsia. If you have any questions, you can email me at email@example.com. There are too many of you struggling with this illness on Facebook and I can’t keep up with the Facebook comments. So please email me if you have any questions. If you get my story more than once that doesn’t mean I am trying to sell Silicone plug or send you spam. I trying to help as many vertigo sufferers as I can as I can’t keep up with the names. Good luck!